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Support From Friends and Family

Posted by on Jul 29, 2016 in acceptance, caregivers, community collab, coping, featured, friends and family, guest author, relationships | 2 comments

This week we asked: “What is your favorite thing a friend or family member has done for you when you’re flaring?” Here are some of our favorite answers. Read and re-read when you’re feeling down.   Keidra says she’s had numerous friends walk her home when her vision is bad and install lights in her hallway and on her stairs to help her see. When Fran was in the second acute phase of her Ramsay Hunt Syndrome and couldn’t move or see, her friend brought her a huge shopping bag full of books on tape so she would have something to do. Michelle’s 70-year-old supermom came and helped for the 3 months of recovery Michelle spent after a nasty car accident. Lindsay’s roommate and boyfriend threw her a mini party with cookies and party blowers when she had to go through an injection medication process that she hated. Tania’s friend cleans and de-cluttered her room for her as a surprise when she was at the doctor. Patricia’s mother moved to live with her daughter and help at home! When Mary Beth was embarrassed of her chipping toe nails at the hospital, her husband gave her a pedicure. Alix’s friend from across the US sent her flowers when she was in her first overnight hospital stay.   We are surrounded by such love! Being a ChronicBabe can be tough, but having loving family and friends makes all the...

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QOTW: What’s in your ear buds?

Posted by on Jul 22, 2016 in community collab, coping, Creativity, featured, guest author, humor, inspiration, self care | 2 comments

We asked, you answered! This week our Question Of The Week was “What’s your favorite podcast that gets you through the week?” Here are some new podcasts for you to listen to, suggested by our ChronicBabe community: 2 Dope Queens Dedra suggested the WNYC podcast “2 Dope Queens.” I recently began listening to it and it’s an amazing commute podcast as it’s essentially a live comedy show with some of the funniest people in NYC. Listen to it here.   Adventures in Roommating Thanks Brianna for this suggestion! “Adventures in Rommating” follows two roommates living together in LA who talk about love, life, and film. Listen to it here.   Lore Fran suggested Aaron Manke’s podcast, “Lore,” and I’m totally with her! It’s a wonderfully skin crawly podcast that details true scary stories. Listen to it here.   Welcome to Night Vale Thanks Sabrina for this cult podcast classic. The podcast gives updates on the ficitonal small desert town of Night Vale. Listen to it here.   99% Invisible Kerry-Ann suggested this popular podcast that won the Webby award this year for best podcast. “99% Invisible” is about the unnoticed architecture and design that shape our world. Listen to it here.   Still Untitled the Adam Savage Project Amy Graves (read her contributor article here!) suggested this podcast where Adam Savage, Norm and Will discuss all topics from Adam’s life to hot-button issues within the maker community. Listen to it here.   History of English Vikki, “language geek,” suggested this podcast that is covering the history of the English language, starting at the beginning. The podcast is barely into Middle Ages, so follow it as it progresses to our modern-day English! Listen to it here.   Can I Pet Your Dog? Thank you Anne for introducing us to this podcast for unashamed dog lovers. The podcast includes segments liked “Dogs We Met This Week,” “Cool Dog Tech,” “Mutt Minute,” “Cool Dog Tech,” and “Dog News.” Listen to it here.   Stuff You Should Know My favorite podcast will always be “Stuff You Should Know” from It’s a podcast hosted by Josh and Chuck where they cover everything you would ever want to know, from SuperBalls to LSD to cats to poop (a lot of us can really learn a lot from that one!) to Lizzie Borden to animal imprinting. Truly everything! Give it a listen here.   Do you have any favorite podcasts we didn’t mention? Let us know in the comments below!   This post was written by Alix Kramer, ChronicBabe intern and proud ChronicBabe....

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Choose Happy

Posted by on Jul 18, 2016 in acceptance, community collab, coping, featured, guest author, inspiration, resilience | 1 comment

Post written by ChronicBabe Tracy Mooney   It’s been three and a half years. Three and a half years since my diagnosis, trying to learn the limits of my body, and to learn the new “normal.”   And yet, in those three and a half years I still haven’t figured it all out. At least five days a week I still find myself wondering aloud why am I so tired? as if this is not my life. As if I don’t feel like this every day. This is my life, just as it is the life of every other person living with autoimmune disease.   At first I tried to fight it. I thought if I just did everything right I would get better. So I made changes to my diet, I drank water, I exercised regularly, I slept. And still my disease continued.   I tried taking herbs. I thought somehow there would be a magical combination of herbal tea that would somehow make me well. Then I realized that boosting my immune system just “boosted” my messed up immune system. Silly me! My immune system is broken.   I tried restricting my diet even more. I thought, there must be something I’m eating that my body is allergic to. If I just juice enough, or cut out sugar and dairy, or eat enough salad, I will get well!   When nothing made any difference at all, it slowly started to sink in. THIS IS MY NORMAL.   I am always going to be tired. I’m always going to be hurting. I am always going to be fighting swollen fingers and swollen joints. I am always going to feel like I’m thirsty. I’m always going to feel like I’ve got sand in my eyes. I’m always going to have to balance what I do every day so that I have enough energy for the things I really want to do.   For me, the lesson is about taking care of myself and learning to be kind to myself when I can’t do as much as I used to be able to do. This experience is about learning.   Each day I make choices, moment to moment. I make choices that help me feel better. I choose to rest. I choose not to engage with people or situations that stress me out. I choose not to take things personally.   I choose to do something that makes me happy, like sewing. I choose to listen to music that lifts my mood and makes me want to dance. I choose to use some essential oils in my space that help me relax or energize me or simply to make me...

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QOTW: What’s your favorite self-care practice?

Posted by on Jul 15, 2016 in community collab, coping, Creativity, featured, guest author, humor, inspiration, practicalities, self care | 6 comments

ChronicBabes need to take some time to indulge in self care and self love. This week we asked you What’s your favorite self-care practice? Here are some of our favorite responses:   Painting our Nails Here’s Jenni with her nail polish: And a gorgeous showing from Katie S.   Face Masks My guilty pleasure is face masks…every day. CVS sells some really great bottles of face mask stuff for cheap and the 4 bottles I have have lasted me for 3 years! Here I am wearing the avocado mask. According to CVS they are just $4 a pop! My favorites are the avocado and the blue one (dead sea minerals). Peep them here. Reading a good book Mary Beth L. likes to read with her little dachshund next to her! Mary Beth I think we’d all like to know the name of the book you’re reading your adorable puppy. Other great ideas An epsom salt bath Spending time outside Bike rides Adult coloring books (This coloring book is hilarious and highly recommended by me if you’re going through a break up.)   Do you have any other great ways to practice radical self care? Let us know in the comments!   Post written by Alix Kramer, ChronicBabe intern and proud...

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Community Collab: What’s in Your Bag?

Posted by on Jul 8, 2016 in community collab, Creativity, featured, guest author, practicalities, self care | 3 comments

Hey babes! This week’s QOTW was “What’s one thing you never leave home without?” We had a bunch of great answers and an especially funny one (that you’ll have to scroll to the bottom to see!)   Some of the most common answers included: Phone, with pill timers! Hair ties ChapStick Inhaler Credit cards and drivers license (note the license info) Kleenex And of course pills of every shape and size And: keys, wallet, planner, pain gel, water Our favorite answer comes from Ann U. She says: “I think we should list what we WISH we carried! My list is a string bikini, a thermos of piña coladas, George Clooney’s phone number & keys to my Maserati.” All graphics made by Alix Kramer, ChronicBabe intern and proud...

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Community Collab: What’s Your Favorite Feel-Good TV Show

Posted by on Jul 1, 2016 in community collab, coping, Creativity, featured, friends and family, guest author, inspiration, self care | 2 comments

Hey babes! We had a ton of amazing suggestions for our Question of the Week about your favorite feel-good TV show. Here’s a list of all your favorites, along with some awesome quotes. Save this as a reference for the next time you’re feeling down! Multiple Mentions Some of the shows were hella appreciated by the community. The Golden Girls The Golden Girls was by far the winner with five separate mentions as favorite feel-good TV show. The Golden Girls is a sitcom about four older, single women living in Miami. The show, and the women featured, have remained iconic for decades. Great Quote: “The older you get, the better you get. Unless you’re a banana.” Frasier Frasier tied for second place with three separate mentions. Frasier is a Cheers successor about psychiatrist Frasier Crane, who gets into all types of situations in Seattle with his father (with whom he shares an apartment), his father’s physical care assistant, his brother, and Eddie the dog. Great Quote: “You know what? Copernicus called and you are NOT the center of the universe!” The Big Bang Theory The Big Bang Theory tied with Frasier for second place with three separate mentions. The Big Bang Theory follows best friends and physicists Leonard and Sheldon and their friends Howard and Rajesh as they try to interact with Penny, Leonard, and Sheldon’s pretty neighbor. The show is still on air. Great Quote: “Scissors cuts paper, paper covers rock, rock crushes lizard, lizard poisons Spock, Spock smashes scissors, scissors decapitates lizard, lizard eats paper, paper disproves Spock, Spock vaporizes rock, and, as it always has, rock crushes scissors.” Gilmore Girls Gilmore Girls also had two mentions. Gilmore Girls is a drama that focuses on the relationship between single mom Lorelai Gilmore and her daughter, Rory. Great Quote: “It’s all any of us wants: to find a nice person to hang out with ’til we drop dead. Not a lot to ask!” Parks and Rec Parks and Recreation also had two mentions. Parks and Rec follows Leslie Knope, superstar woman and deputy director of the Parks and Recreation Department in Pawnee, Indiana. It’s a laugh-out-loud show that follows the antics of the office employees: Ron Swanson, April Ludgate, Andy Dwyer, Tom Haverford, Ann Perkins, and Ben Wyatt, to name a few. Great Quote: “We have a couple of house rules though. You can’t use the front door; you have to climb in through the back window. No personal phone conversations. If you ever speak to me in Spanish, please use the formal ‘usted.’ And no electricity after 6:00 PM. A couple more rules: if you ever watch a sad movie, you have to wear mascara so we can see whether or not you’ve been crying. There’s no noise allowed on Mondays. And no...

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