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Join me and for a book release party September 25

Posted by on Sep 21, 2017 in announcements, chronicbabe 101, featured | 0 comments

I’m so lucky to announce that my friend Tami Stackelhouse, the Fibromyalgia Coach, is hosting a book release party for me on September 25, at 5pm ET, 4pm CT, 2pm PT. So fun! Join us as we talk about what it’s like to be ChronicBabes and creatives, and how together we’ve created three books—despite having chronic illness. It’s going to be a SUPER-FUN LIVE webinar and you’ll get to see inside the book, and hear all about all the fun things Tami and I do—including all the strategies we use to stay productive even on our worst days. We’ll talk about sexuality and chronic illness; enlisting the help of your “team”; managing your time and energy; and much more. Join us! Sign up TODAY so you can secure a spot for this exciting online launch party. I can’t wait to see you...

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It’s a party: ChronicBabe 101 is out September 25

Posted by on Sep 21, 2017 in announcements, chronicbabe 101, featured | 4 comments

Friends, I am THRILLED to announce that my new book, ChronicBabe 101: How to Craft an Incredible Life Beyond Illness, comes out September 25. Woo hoo! To be the FIRST to know when it’s available for sale, sign up at ChronicBabe101.com – a website that will also be packed with resources to go along with the book. There’s so much goodness to share with you! There are 11 expert interviews with a collection of awesome folks I call my “Pep Squad.” There are tons of caregiver perspectives so we can be sure to understand what it’s like for them to love us. And the book is PACKED with practical advice, heartfelt encouragement, personal stories from my journey to becoming a ChronicBabe, and much, much more. There’s also fun swag! Starting September 25, when you go to ChronicBabe101.com, you’ll be able to order buttons, stickers, wristbands, and more so you can show off your ChronicBabe pride. I’ll also be hosting contests, giveaways, webinars, and much more in the coming weeks. The BEST WAY to keep up with everything is to check out my Instagram, Facebook, or Twitter accounts – I’ve been showing off lots of sneak peaks over there for the past week and it’s really fun to see what y’all are loving! I also want to reassure you that this book will be available to you in all your favorite formats: print (my personal favorite), ebooks for Kindle, Nook, and iBooks, and I’m starting to work on an audiobook version (that one will take a couple months to work out). Babe, I hope you’re as excited as I am! This is gonna be FUN. xo,...

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The ChronicBabe 101 book is almost here!

Posted by on Aug 25, 2017 in announcements, chronicbabe 101, featured | 8 comments

I’ve been away for a bit, and a few of you have checked in to see that I’m okay—thank you! I’m just fine (well, I’m exhausted, but happy.) The project I’ve worked on the past few years—ChronicBabe 101: How to Craft an Incredible Life Beyond Illness—is almost here! It’s going to be a big, beautiful book…with an accompanying website packed with audio, video, and downloadable resources like worksheets and a study guide. It’s gonna be SO good, y’all. Once the book is out, I’ll be back to my regular schedule of YouTube videos and other social media nonsense, and many more blog posts and guest interviews. (I have some really fun new projects coming soon, too!) Can’t do this alone I’ve been very lucky to have the support of so many people, including the nearly 600 individuals and organizations who supported the project as part of my Kickstarter. In particular, my dear friends, husband, and family have been awesome in recent months as I went all-in on finishing this project. My BFF cooked me dinner; my husband did the laundry; my family texted me words of support. I needed every moment of it, because finishing this project has been a whirlwind of details and decisions and it’s been physically and emotionally draining. It’s not just the physical and mental work of crafting a 90,000-word book. It’s also coordinating the efforts of a handful of consultants who are helping me make it great, including two photographers, a graphic designer/illustrator, a copyeditor, a digital conversion specialist, and a web designer. It’s researching dozens of tools and services to make sure I’m using the right methods for delivering the book and all of its associated content. It’s balancing a budget and trying to pinch pennies without skimping on the product. Stepping out on a limb And it’s being extremely vulnerable, in a very public way. My entire life, I wanted to publish a book; this is my life’s dream coming true. While I’m very confident y’all are gonna love it, I also have moments of panic. What if all this work doesn’t pay off? What if people don’t love it? What if there’s a typo? Some days, my anxious side likes to try to take over. I know this, though: This work has already paid off, because I’m making something that will help people, and I’ve learned a ton through the process—and had the pleasure of working with some other wonderful creatives. I also know people will love it, because I’ve been bringing you ChronicBabe for 12 years and y’all just keep coming back. And I also know that, yes, there will undoubtedly be a typo or two, no matter how many times...

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I’m still here. Here’s what’s been going on at ChronicBabe HQ…

Posted by on Apr 21, 2017 in announcements | 53 comments

Hello, my friends. It’s been a while since I posted, and I wanted to give you an update—especially since a few of you have written me recently asking if I’m okay. I’m okay. But just okay. It’s been a rough few months here at ChronicBabe HQ. I’ll tell you about it now, because a big part of the reason I run this project is to show the real side of life with chronic illness, including all of its ups and downs. And I want to fill you in on how this part of my business works, too, because it has bearing on how often I’m able to create new content. Acute illness In December 2016 and January 2017, I had an extreme upper respiratory infection that lasted for weeks and sent me to the hospital. It was very scary—struggling to breathe always is, right? Because of that, I missed a lot of fun holiday celebrations and travel. It took me a very long time to recover, and during that time, I was almost completely unable to work. That meant client work fell behind schedule, ChronicBabe projects fell behind schedule, and I spent a lot of time in my PJs… which sounds dreamy but seriously, after a few weeks, a girl just wants to put on a bra and get outside, right? I think all of us know how hard it is to live with chronic illness, and think it should prepare us for handling acute illness all breezy-like, except it doesn’t. In fact, I kind of resented the acute illness; how DARE I get another illness on top of all the other crap I have to manage day in and day out! Sigh… this is just life. It does help some, but when we’re already sick all the time and we pile on another sickness, it’s really tough. A beautiful thing is that I rallied for a couple days in there and got married! It was a tiny ceremony with a tiny group of friends, and low-pressure, and just perfect. I’m very lucky I found enough health to enjoy that day. Family tragedy Quick on the heels of my recovery from acute illness, my mother-in-law became gravely ill. My husband and I drove overnight to be with her and our family, and ended up staying out of town (mostly at the hospital, and then a hospice center) for a couple weeks. She passed away, we held a lovely service, and came home. And I felt completely numb. I’m crying as I write this. I only knew Connie for about seven years, but I saw what an incredible presence she was in the family, and I’m forever grateful to have...

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Vote for ChronicBabe in the 2016 WEGO Health Advocate Awards: Deadline October 21

Posted by on Oct 13, 2016 in announcements, featured | 0 comments

Hello, babelicious friends! I’m thrilled to announce ChronicBabe is up for SEVEN awards this year in the 5th Annual WEGO Health Advocate Awards. So exciting! I need your endorsement to qualify as a finalist in any of the categories. Can I count on you? (Much more fun than voting in the Presidential election, amirite?!) To endorse me – which counts as a vote – click the badge below. Thank...

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If you’ve ever talked about “spoons” or called yourself a “spoonie,” take a moment to help out its originator, Christine Miserandino

Posted by on Sep 29, 2016 in announcements, featured, friends and family, guest author | 5 comments

by Linda Kaserman, admin for Bydls.com (editor’s note: Christine is a long-time friend of mine, and I hurt so much for her right now. She has done so much for our community and while I almost never post things like this, I am in big favor of supporting her in this time of crisis. xo, Jenni) Christine Miserandino, health advocate and author of The Spoon Theory, has had a really tough year. Christine was due to deliver a beautiful baby girl in March 2016. She was hospitalized after suffering months of constant nausea and vomiting, then weeks of renal failure and trying to keep the baby to term. On January 26 she had a c-section to deliver her stillborn daughter. This heartbreaking and soul-crushing experience affected the whole Spoonie community, too. Christine reached out for comfort and assistance in getting through this devastating event in her life. The response was amazing; she received so many responses of encouragement, of support and sympathy, and lists and lists of resources to help her climb out of her depression. While living with this grief, Christine faced serious jaw surgery. Christine’s teeth are literally falling out of her mouth and she’s needed six teeth extracted, four root canals, and too many fillings to count. The effects of 20+ years of steroids, plus many months of throwing up many times a day during her pregnancy, plus saliva issues from Sjogren’s, have taken their toll. Christine literally lost her smile – well, she still has a few teeth in the front. Plus, there are more dental surgeries and repair work for her mouth and more huge bills to come for Christine’s smile. Dental surgery, implants, and dentures don’t come cheap. The financial aspect of all of this has given her a new symptom: panic attacks and anxiety.  The events I’ve described have been physical, mental, and financial. There is a mountain of hospital bills already. The amount is staggering – upwards of $50,000. Christine and her parents are using their credit cards, too – and those are nearing the max. At the end of the day, Christine is a Spoonie, too, and after pouring her life into helping us all, she needs us to help her by giving a little back. Christine finally allowed her friends to ask the chronic illness community – all her fellow spoonies – for help: We’ve set up a page for donations and you can read her entire story at her GoFundMe page: Help Christine Smile. Every little bit helps and Christine would be so thankful for your donation. We’ve also set up a Facebook page where you can “like” us and offer support and share her story. Please help. Christine is one of the original chronic...

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WE’RE NOT DOCS!

Info posted here should not be considered medical advice; it's not intended to replace consultation with physicians or other health care providers. 

Every Babe needs to find her own path for achieving optimal wellness. While we do tons to help guide you, it’s up to each of you to make well-informed choices and live with the consequences. ChronicBabe.com assumes no liability or responsibility for stuff that goes wrong.

Links to other web sites are provided as a service, but do not constitute endorsement of those sites by ChronicBabe.com; we are not responsible for their content. We do our best to find the most rockin’ resources but hey, we’re human.

Take what you like from this space, and leave the rest. Use what you learn to make your life better. Be responsible for your own choices. And please don’t sue us. XO!

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