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Welcome to the Help Desk
Welcome to the Help Desk. How may we help? Are you looking for resources related to a specific disease? Chances are, we've found something you'll find useful - check our listings under Conditions, where we cover dozens and dozens of diseases. Are you a friend, relative, or employer of a ChronicBabe? We've got some great resources just for you in For Friends & Family. Looking for info on organizations that help all women? Our collection of Women's Organizations will get you started. We've even gathered some great general information on health and well-being, for all folks - Chronic or not. Dive in - we're here to help.
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10 Newest Entries:
Let's Talk Pain
Let's Talk Pain is a collaborative site, made up of resources from the American Pain Foundation, the Academy of Pain Management, the American Society for Pain Management Nursing, and a few more organizations. The entire list is here along with links and missions.
What we love about this project is that it engages real people and gets them to share their honest, real-life stories about living with chronic pain. This information offers inspiration, hope, and some practical tips.
Dealing with Chronic Illness for Employees and Organizations
Carolyn S. Matheson wants us to think differently about chronic illness, especially in the workplace.
She's got a terrific site with tons of resources for working people and their bosses. There are tips for employees, for the organizations that hire them, and inspirational stories for one and all.
The Headache Coach
Jan Mundo is The Headache Coach, and her site is packed with terrific resources for folks with migraine, chronic daily headache, or just a good-old-fashioned headache.
We love her collection of resources on mind-body connection, which is so powerful. If your head hurts, check out what The Headache Coach has to offer.
Alliance for Headache Disorder Advocacy
Wondering what you can do to bring more attention to the cause of Babes with headache disorders? The Alliance for Headache Disorder Advocacy is a good place to start.
This group is a coalition working to increase NIH funding for headache disorders research. Join their Action Network to get updates on the issues and how to speak out!
Never Walked in High Heels
Blogger Athena Stevens gets the issues out on the table at her new disability blog, Never Walked in High Heels.
Thoughts on politics, justice, rights, faith, public transit, and the daily grind of city living in a wheelchair—she writes about it all with candor, intelligence, and wit.
Giggle On! Tees with Bling
Sparkly t-shirt? Check. Making people smile? Check. Supporting a good cause? Double check.
The fine folks at Giggle On! sell t-shirts, tanks, and even doggie shirts bedecked with their logo in Swarovski crystals to remind everyone that laughter is some powerful medicine. We think they're adorable! Proceeds from sales support the American Foundation for Suicide Prevention, a cause dear to the site creator's heart.
FORCE: Facing Our Risk of Cancer Empowered
Information + Support = Empowerment, and that is definitely what FORCE is all about. The site is a trove of information aimed at women who are at risk for hereditary breast or ovarian cancer.
Whether you've been diagnosed with breast or ovarian cancer, or know that you're at risk (a "previvor," as FORCE says), you'll want to head over and take advantage of their resources. Find out more about assessment and options for managing your risk, check out their lengthy reading list, or talk to others about facing the conflict, grief, and dilemmas that accompany being at risk for breast or ovarian cancer.
Vulval Health Awareness Campaign
Vulval disorders can affect girls and women of all ages, and the Vulval Health Awareness Campaign is working to provide support and information through their site, newsletter, and helpline.
From their main page, you can download a PDF on doing a vulva self-examination, or watch a video of a self-examination. (NSFW, of course.)
CAN: Cure Arthritis Now!
Chronic babes all know about the struggle against ignorance of chronic conditions. CAN is a fundraising and advocacy network working at the grassroots level to raise awareness about arthritis.
While their main push is fundraising for their education efforts, the site also includes exercise tips and information to help you be a better advocate for your own health. You can also find out about getting involved in clinical trials! And they want you to join their cause. After all, if we Babes aren't out there telling the world the facts about arthritis among young women, who will?
FibroAction: News for UK Babes
Fibro Babes in the UK! Looking for up-to-date fibromyalgia-related news and events? Then you should get hooked up with the FibroAction network!
FibroAction's primary goal is to raise awareness of fibromyalgia. In addition to info on upcoming fibro- and pain-related events in the UK, they stay on top of the latest in fibro research and provide resources for patients, such as an e-newsletter, help finding local support groups, and even a list of health care professionals recommended by other fibro patients. We love their positive and proactive attitude!