Welcome to the Help Desk 

The Ehlers-Danlos National Foundation (EDNF) is a great organization that "creates resources for those affected by  the connective tissue disorder Ehlers-Danlos Syndrome."

Register for free, and suddenly a wealth of information and resources are at your fingertips! This genetic disorder has a large group of subtypes and symptoms, so the more resources available to explain the condition, the better!

AC Syndrome, or Arachnoid Cyst Syndrome, is a rare neurological disease lacking a specific cause.

Although AC Syndrome is a rare disorder, the National Institute of Neurological Disorders and Stroke (NINDS) offers great information on Arachnoid Cyst Syndrome, as well as information on clinical trials being conducted locally and worldwide.

The Arachnoid Cyst Foundation is a site developed to provide support and education for people who have this rare disorder.

Arachnoid Cyst Syndrome, or AC Syndrome, is a very rare, long-term neurological disease that typically affects men more than women. Although this is a serious condition, with proper diagnosis and treatment, AC Syndrome can usually be resolved and/or treated.

Hashimoto's Disease, a form of hypothyroidism, is an autoimmune disorder prevalent in Northern American women.

Hashimoto's Disease, also called Hashimoto's Thyroiditis, is named after the Japanese doctor who first identified its symptoms and recorded them in 1912. Although the name may sound intimidating, the great news is that the condition is both easily detected and treated.

The Huega Center is a nonprofit agency that was created in 1984 by Jimmy Huega, whose core philosophy at the time was "that a person can have a chronic illness and also maintain their health."

Twenty-four years later, "The Huega Center leads the way with comprehensive programs that empower people and families living with MS to transform and improve their quality of life." This is a great collection of resources for ChronicBabes that need information and an uplifting voice!

Any woman who has engaged in a sexual (gasp!!) relationship may be at risk for cervical cancer or human papilloma virus (HPV) in her lifetime.

The National Cervical Cancer Coalition (NCCC) is a great resource full of information on prevention, detection and treatment of cervical cancer. Their goal is to provide women with safe, reliable information concerning their gynecological health as well as erasing any stigma associated with cervical cancer and HPV. 

The PFDN is a great network designed "to do research to improve the care and daily lives of women with pelvic organ prolapse and and bladder and bowel control problems."

A recent press release from Kaiser Permanente says that a new study by the company found that one-third of women suffer from one or more pelvic disorders. With the condition so prominent in women, the PFDN is a great resource for exploring the most recent research, clinical trials currently being performed, advice on finding a doctor and so much more!

The TMJ Association has a cool online forum where those affected by temporomandibular joint and muscle disorders (TMJDs)—and their loved ones—can exchange information, share experiences and find mutual support.

The forum extends the association's outreach to raise awareness about the realities of TMJDs and advance our mission to support TMJ patients and their loved ones. Check it out, Babes!

Diabetes TalkFest is one of the top sites for live chats about related topics, and we love the recently updated interface (new in summer 2008).

The site is focused on scheduled live chats and a chat room where folks can congregate at their leisure. If you're looking for information or to connect with like-minded folks (or at least other Babes with similar experiences) this is a great place to start.

Take a Chronic Holiday from your chronic illness and get some giggles.

We dig this blog, which posts occasional funnies about illness. Our personal favorites: old ads that berate people for getting ill. "Cough, you chump!" Nuff said.