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woman on laptopWelcome to the Help Desk 

Welcome to the Help Desk. How may we help? Are you looking for resources related to a specific disease? Chances are, we've found something you'll find useful - check our listings under Conditions, where we cover dozens and dozens of diseases. Are you a friend, relative, or employer of a ChronicBabe? We've got some great resources just for you in For Friends & Family. Looking for info on organizations that help all women? Our collection of Women's Organizations will get you started. We've even gathered some great general information on health and well-being, for all folks - Chronic or not. Dive in - we're here to help.

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10 Newest Entries:

The Headache Coach

Jan Mundo is The Headache Coach, and her site is packed with terrific resources for folks with migraine, chronic daily headache, or just a good-old-fashioned headache.

We love her collection of resources on mind-body connection, which is so powerful. If your head hurts, check out what The Headache Coach has to offer.

Alliance for Headache Disorder Advocacy

Wondering what you can do to bring more attention to the cause of Babes with headache disorders? The Alliance for Headache Disorder Advocacy is a good place to start.

This group is a coalition working to increase NIH funding for headache disorders research. Join their Action Network to get updates on the issues and how to speak out!

Never Walked in High Heels

Blogger Athena Stevens gets the issues out on the table at her new disability blog, Never Walked in High Heels.

Thoughts on politics, justice, rights, faith, public transit, and the daily grind of city living in a wheelchair—she writes about it all with candor, intelligence, and wit.

Giggle On! Tees with Bling

Sparkly t-shirt? Check. Making people smile? Check. Supporting a good cause? Double check.

The fine folks at Giggle On! sell t-shirts, tanks, and even doggie shirts bedecked with their logo in Swarovski crystals to remind everyone that laughter is some powerful medicine. We think they're adorable! Proceeds from sales support the American Foundation for Suicide Prevention, a cause dear to the site creator's heart.

FORCE: Facing Our Risk of Cancer Empowered

Information + Support = Empowerment, and that is definitely what FORCE is all about. The site is a trove of information aimed at women who are at risk for hereditary breast or ovarian cancer.

Whether you've been diagnosed with breast or ovarian cancer, or know that you're at risk (a "previvor," as FORCE says), you'll want to head over and take advantage of their resources. Find out more about assessment and options for managing your risk, check out their lengthy reading list, or talk to others about facing the conflict, grief, and dilemmas that accompany being at risk for breast or ovarian cancer.

Vulval Health Awareness Campaign

Vulval disorders can affect girls and women of all ages, and the Vulval Health Awareness Campaign is working to provide support and information through their site, newsletter, and helpline.

From their main page, you can download a PDF on doing a vulva self-examination, or watch a video of a self-examination. (NSFW, of course.)

CAN: Cure Arthritis Now!

Chronic babes all know about the struggle against ignorance of chronic conditions. CAN is a fundraising and advocacy network working at the grassroots level to raise awareness about arthritis.

While their main push is fundraising for their education efforts, the site also includes exercise tips and information to help you be a better advocate for your own health. You can also find out about getting involved in clinical trials! And they want you to join their cause. After all, if we Babes aren't out there telling the world the facts about arthritis among young women, who will?

FibroAction: News for UK Babes

Fibro Babes in the UK! Looking for up-to-date fibromyalgia-related news and events? Then you should get hooked up with the FibroAction network!

FibroAction's primary goal is to raise awareness of fibromyalgia. In addition to info on upcoming fibro- and pain-related events in the UK, they stay on top of the latest in fibro research and provide resources for patients, such as an e-newsletter, help finding local support groups, and even a list of health care professionals recommended by other fibro patients. We love their positive and proactive attitude!

Ehlers-Danlos Syndrome

The Ehlers-Danlos National Foundation (EDNF) is a great organization that "creates resources for those affected by  the connective tissue disorder Ehlers-Danlos Syndrome."

Register for free, and suddenly a wealth of information and resources are at your fingertips! This genetic disorder has a large group of subtypes and symptoms, so the more resources available to explain the condition, the better!

AC Syndrome

AC Syndrome, or Arachnoid Cyst Syndrome, is a rare neurological disease lacking a specific cause.

Although AC Syndrome is a rare disorder, the National Institute of Neurological Disorders and Stroke (NINDS) offers great information on Arachnoid Cyst Syndrome, as well as information on clinical trials being conducted locally and worldwide.

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