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Unfriend Me! How to Use Facebook to Cope Better with Chronic Illness #AWAPwednesday

Posted by on May 4, 2016 in ChronicBabe Basics, coping, featured, friends and family, practicalities, self care | 10 comments

  This week’s video came from a desire of mine to create better boundaries and protect my precious time… so I unfriended a few hundred people on Facebook. It is wonderful! I think that unfriending folks—and a few other strategies I share today—can help you get back lots of time to spend on quality conversations. Watch today’s video now, which is packed with practical advice: *AWAP = As Well As Possible Now it’s your turn: How are you managing your digital presence? Have you unfriended people? I wanna know! Join the conversation in the comments below, share your experience and ask for advice from our community. Want to watch more videos like this? Check out our AWAP Wednesday video playlist, which has more than 10 hours of guidance, advice, and bloopers. Is there a question I can answer for YOU? Add it to the comments below, or shoot me an email. Until we meet again: Be AWAP! Smooches! ** update: a lovely reader shared this advice, which seems to work fairly well. if you’re unliking more than a couple dozen pages, though, do them in batches. trust me. 🙂 In your video you said that you have to unlike each page but actually there is a way to unlike them in bulk. Click on “Like Pages” on the left hand side of your facebook timeline. On the pages page click on “Liked Pages” at the top. On the top right there is a “Review Like Pages” box. Click on the “Get Started” box. A page will come up with all the pages you currently like. You can select the ones you want to unlike. Easy peasy! Hope that helps.    Rough transcript: Hi! I’m Jenni Prokopy of ChronicBabe.com and today is AWAP Wednesday (that stands for As Well As Possible). Each week, I offer you my personal favorite tips and techniques to help you craft an incredible life beyond illness. Yes! I know you can. Subscribe to the ChronicBabe YouTube channel today to make sure you never miss another video, OK? Social media has taken over our lives in many way, and Facebook is our biggest digital overlord. No longer a simple way to stay in touch with friends, Facebook is now how we get political news, family updates, chat with friends overseas, and a bazillion more things. I’m not here to argue against using Facebook; on the contrary, I love using Facebook—strategically. And that means setting good boundaries. And that means unfriending folks. How much time do you spend scrolling past updates from people you’ve never met but feel obligated to be friends with because you once met them at a party? Or you went to high school together? Or you both know someone else, so...

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Travel Tips for Folks with Chronic Illness and Pain (AWAP Wednesday)

Posted by on Apr 7, 2016 in activism, ChronicBabe Basics, coping, featured, pain, self care, Work | 19 comments

I recently traveled to New York for a U.S. Pain Foundation event, and it got me thinking: what are some of my colleagues’ and friends’ favorite travel tips for people with chronic illness and chronic pain? This week’s video is PACKED with tips—I count more than 20—and I’m really excited to share it with you today. It’s longer than usual, but I hope you find it worth your time. *AWAP = As Well As Possible Now it’s your turn: What’s YOUR favorite travel tips for folks in our community? I wanna know! Join the conversation in the comments below, share your experience and ask for advice from our community. Want to watch more videos like this? Check out our AWAP Wednesday video playlist, which has more than 10 hours of guidance, advice, and bloopers. Is there a question I can answer for YOU? Add it to the comments below, or shoot me an email. Until we meet again: Be AWAP! Smooches! Transcript, provided by one of our awesome readers: Jenni Prokopy- “Hey everybody. It’s Jenni Prokopy from chronicbabe.com and today is another AWAP Wednesday. If you haven’t watched any of these before, a quick refresher. AWAP stands for As Well As Possible. And in all things, that what I wish for you. That you live your life as well as possible. No matter how much you have to deal with chronic illness or chronic pain, I think you can do it. I’m working on doing it. Yes! I know that you can. So, I’m coming to you today from a hotel in Westchester, New York, because I’m here for one of our, um, US Pain Foundation Take Control of Your Pain events. I’m wearing my US Pain Foundation shirt, which I blinged out because it’s a polo shirt, and I don’t wear those. So *laughs* I had to make it my own and kinda be silly with it. You know how I roll. So, I wanted to share with you a few of my favorite travel tips, and I”m gonna try to get some from some of my colleagues because they are seasoned chronic pain/chronic illness travelers. So, here we go.” *scene cut* Jenni- “So I know it’s a little bit of wobbly cam today because I’m doing this on the fly. But I hope you think it’s worth it.” *scene cut* Jenni – “Okay here I am with Lori Monarca. She runs the US Pain Foundation office, she is amazeballs. She’s got a tip for you.” Lori Monarca- “Um when traveling I try to leave a little bit earlier, so before an event I have time to relax and unwind.” Jenni- “I love it. Thanks, lori!” *scene cut* Jenni- “One of my first tips is always...

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3 Things To Do When Things Fall Apart (AWAP Wednesday)

Posted by on Mar 30, 2016 in coping, featured, Health Care Reform, inspiration, pain, practicalities, self care | 4 comments

It’s been a really, really rough couple months here at ChronicBabe HQ. I’ve been flared up so badly I couldn’t work, wasn’t socializing, wasn’t even bathing regularly—it was BAD. I’ll explain why this happened in an upcoming post, but for now, the important thing is that I’m starting to feel better again. Yay! This week, I filmed my first fresh AWAP Wednesday video in almost two months! In it, I share my top three strategies for coping when your life feels like it’s falling apart. I would LOVE to hear your reaction so take a few minutes now and watch, and then join the conversation below… *AWAP = As Well As Possible Now it’s your turn: What do YOU do when things take a turn south? Which strategies have helped you the most? I wanna know! Join the conversation in the comments below, share your experience and ask for advice from our community. Want to watch more videos like this? Check out our AWAP Wednesday video playlist, which has more than 10 hours of guidance, advice, and bloopers. Is there a question I can answer for YOU? Add it to the comments below, or shoot me an email. Until we meet again: Be AWAP! Smooches! (Rough) transcript: I’m baaaaaaaack! Didja miss me? I missed me! I haven’t recorded a video in six weeks so this is momentous. Woo hoo! Hi! I’m Jenni Prokopy of ChronicBabe.com and today is AWAP Wednesday (that stands for As Well As Possible). Each week, I offer you my personal favorite tips and techniques to help you craft an incredible life beyond illness. Yes! I know you can. Subscribe to the ChronicBabe YouTube channel today to make sure you never miss another video, OK? Working From Experience I have been in the midst of a months-long flare that was, quite possibly, the worst I’ve felt since I was initially diagnosed with fibromyalgia. For weeks, I couldn’t work, didn’t sleep well, couldn’t socialize, didn’t make any crafts… I was a WRECK. It felt like everything was falling apart—like my life was in a downward spiral. Good thing I am a ChronicBabe, because we ChronicBabes know that when everything goes to shit, we’ve got to take action FAST to take the best care of ourselves that we can in spite of things that are out of our control. Luckily, I’m on the upswing again, and that’s a huge relief. With my head a little clearer, I’m able to tell you about the three things I did to keep myself afloat during this really bad spell. Sacred Practices I’ve made a couple videos on the concept of Sacred Practices, as taught to me by my friend and coach Jackie Sloane. My sacred practices are a...

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How Do We Take Baby Steps Toward Goals if We Have Chronic Illness? (AWAP Wednesday)

Posted by on Feb 10, 2016 in ChronicBabe Basics, coping, fears, featured, self care | 6 comments

Today’s AWAP Wednesday video is all about taking baby steps, those first little moves toward a goal. For many of us, making changes to accommodate chronic illness can feel overwhelming or downright impossible… but breaking the goal into baby steps can really help! Watch today’s video, in which I share some of my favorite techniques for taking baby steps: *AWAP = As Well As Possible Now it’s your turn: How do you break a big goal into small steps? What has worked, and what hasn’t? I wanna know! Join the conversation in the comments below, share your experience and ask for advice from our community. Want to watch more videos like this? Check out our AWAP Wednesday video playlist, which has more than 10 hours of guidance, advice, and bloopers. Is there a question I can answer for YOU? Add it to the comments below, or shoot me an email. Until we meet again: Be AWAP! Smooches! (Rough) transcript: Spiders. They freak me out. So I’m watching Charlotte’s Web. It’s my baby step toward conquering my fear. But enough about me… today, I’m talkin’ baby steps for you, babe. Hi! I’m Jenni Prokopy of ChronicBabe.com and today is AWAP Wednesday (that stands for As Well As Possible). Each week, I offer you my favorite tips and techniques to help you craft an incredible life beyond illness. Yes! I know you can. Subscribe to the ChronicBabe YouTube channel today to make sure you never miss another video, OK? On Baby Steps: Quite often, when I talk with someone with chronic illness who wants to make a change, they feel overwhelmed by the enormity of it, or they’re scared. I recommend taking baby steps toward their goal. But some folks have a hard time figuring out what baby steps look like for them, so today, I’ve got a technique to teach you that really helps me. Fear Can Stop Us. Let’s say your doctor says it would help you to exercise more, but you’re afraid that getting back to the swimming pool is going to flare you up. That fear keeps you from even trying, right? (I’ve totally been there, so no judgment!) How can we begin to use that fear to propel us to try swimming again? If you’re scared to try something, sometimes diving in headfirst is not a possibility. Instead I like to walk it back. Walk it Back. In this example, I want us to go back to the very first step of the process of getting back into swimming. I think it’s buying a new bathing suit. If you can start by getting yourself a cute new suit that fits great, and hang it on your closet door so you see it each day, that’s...

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How to Get Cool with Fear (AWAP Wednesday)

Posted by on Dec 2, 2015 in acceptance, ChronicBabe Basics, coping, fears, featured, inspiration, practicalities, self care | 9 comments

Today’s AWAP Wednesday video offers one of my favorite, and somewhat radical, approach to fear. We ALL feel fear about life with chronic illness. You are not alone in feeling afraid! But we don’t have to let fear rule our world. We can learn how to get cool with it. Watch today’s video, in which I share a very simple-but-effective technique: *AWAP = As Well As Possible Now it’s your turn: Have you tried sitting with fear? Do you think I’m being a weirdo? Are you excited to try this technique? I wanna know! Join the conversation in the comments below, share your experience and ask for advice from our community. Want to watch more videos like this? Check out our AWAP Wednesday video playlist, which has almost nine hours of guidance, advice, and bloopers. Is there a question I can answer for YOU? Add it to the comments below, or shoot me an email. Until we meet again: Be AWAP! Smooches! (Rough) transcript: Eeeeek! I’m scared, too. We all are. Today’s video is a quickie, and a must-watch. Let’s get scared babes! Hi! I’m Jenni Prokopy of ChronicBabe.com and today is AWAP Wednesday (that stands for As Well As Possible). Each week, I offer you my favorite tips and techniques to help you craft an incredible life beyond illness. Yes! I know you can. Subscribe to the ChronicBabe YouTube channel today to make sure you never miss another video, OK? [Transition] Chronic illness is scary. There’s no getting around that. And anyone who tells you they feel fearless about being sick is, well, probably not being 100% honest with you, or with themselves. Everyone Gets Scared. Everyone gets scared. Everyone. Whether you’re newly diagnosed or a seasoned ChronicBabe like me, you will have moments of fear. You’re afraid you’ll never be well again. You’re afraid of how your illness will impact your family. You’re afraid people will abandon you. You’re afraid of that new bump on your arm. Life with chronic illness is full of fear-inducing moments. You’re not alone with this. Can You Sit With Your Fear? I’ve got a TON of other videos that offer ways to identify fears, conquer them, cope with them, but this video is not one of them. Today, I want you to do something radical. I want you to sit with your fear. “Sitting with” something is a concept from meditation, and from Buddhism, and from many other spiritual pursuits. The idea is to simply look at the feeling, instead of trying to fight it or rid yourself of it. I know, bizarre, right? Here’s the thing: Fear is just a feeling. It’s a moment of experience that passes along your synapses in the brain. It can be fleeting… but sometimes,...

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How to Create Your Own Authentic Holiday Season… and Bypass the Craziness (AWAP Wednesday)

Posted by on Nov 25, 2015 in acceptance, ChronicBabe Basics, coping, featured, friends and family, holidays, relationships, self care | 0 comments

Oh, the holidays are SO stressful! I mean, they’re super-fun. But also, stress: Travel, which can be stressful in and of itself Eating weird/rich/too much of foods that you’re not used to Interacting with family/acquaintances/co-workers with whom you might have strained relationships Overindulgence and temptation at every turn Pressure to be “well” enough to meet the expectations of others to be “festive” and “jolly” even if you “feel like dog crap” and “wish you could be napping instead” Sadness around loss of normalcy, especially for folks who have lost romantic partners or children or pets this time of year Focus on consumption and other money-related stresses BWAH! It’s too much. If we think of it in this way, that is. So I’ve got a different perspective for you to try out: Make your own holiday. That’s right: Make it your own. Don’t try to be everyone’s everything. Eschew traditions that don’t fit your current abilities or interests. Assert your needs. Plan fun things that work for you and feed your joy. I know–this is kind of revolutionary for some of you. The holidays are laden with traditions that we are loathe to break, especially if we don’t want to “let down” family members. But what does the winter holiday season TRULY symbolize for so many of us, no matter our religion or spiritual pursuit? Togetherness. Generosity. Joy. Creativity. Fun. Rest and relaxation. Delicious meals. Snuggle time with pets and our loved ones. Fun. Did I mention fun? Will you get some resistance? Probably. Your great aunt Shirley might think it’s nuts that you don’t want to eat turkey and instead want to have a potluck and invite your two best friends to the family table. Your mom may think it’s bizarre that you want to stay in the city and nestle into your little apartment with your cat and a good book and enjoy some quiet time, instead of traveling across the country to sleep in a cramped guest room. If you’re like me, you might have family members who resist your new tradition of a gift swap (instead of buying dozens of gifts for everyone). But believe me… they’ll learn to love it. Or not. Either way, it’s OK. It’s OK. This holiday time is YOUR holiday time. Make it your own. Make a list of the things that are a priority for you. Make a list of the things that will feed your soul. Make a list of the things that will be fun for you. (I bet these lists are really one big list all together!) Get solid on your priorities, and then gently assert yourself. Planning an authentic, soul-fueling holiday season is a mindful task, so...

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Info posted here should not be considered medical advice; it's not intended to replace consultation with physicians or other health care providers. 

Every Babe needs to find her own path for achieving optimal wellness. While we do tons to help guide you, it’s up to each of you to make well-informed choices and live with the consequences. ChronicBabe.com assumes no liability or responsibility for stuff that goes wrong.

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Take what you like from this space, and leave the rest. Use what you learn to make your life better. Be responsible for your own choices. And please don’t sue us. XO!

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