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Emergency Preparedness Issues and Solutions Series Part 2: What To Stock In Your Residence for Various Emergency Situations

Posted by on Aug 30, 2016 in ChronicBabe Basics, Creativity, fears, featured, guest author, practicalities, resilience | 0 comments

This post was guest-written by Team Blue (Kyrie-Inn Blue with help from Tao Blue, Service Dog, Canine Good Citizen; and Mijo, Service Dog In Training).     Disabled folks are often too busy trying to survive day to day that they neglect tackling the emergency preparedness necessities that may just save their lives, their health, their property, their sanity, and their independent living status. Where do you store your important documents? How can someone track you in a SHTF (“sh*t hits the fan”) situation? Do you have a plan in place for solid shelter if you face a storm? If so, what do you need to have on hand to create viability? Two weeks without power has faced Team Blue on multiple occasions. Let us help you avoid omissions in your checklists!!   Today’s topic: what one should stock in their residence for various emergency situations.   We all need to seriously evaluate our personal emergency preparedness on at least a quarterly basis, rather than wait until the weatherman predicts a “superstorm.” Emergencies of all kinds happen on a daily basis, even those that are un-weather- related, like fires, certain types of evacuations, identity theft, etc. Can you efficiently respond to rather than freeze in a crisis? Team Blue knows it’s easier said than done… unless you have taken the time to prepare, equip, and practice.   EMERGENCY SUPPLIES for your residence Most survival and government emergency preparedness websites advocate planning for a three-day to two-week immediate crisis. Most everything one needs is available at the local dollar store, WalMart, and other discount retailers. If you wants to step up a level, other items like weather band crank radios are available for purchase at reasonable prices at Amazon.com and similar websites.   Start Saving Put aside $10 per month to begin equipping yourself at least minimally for SHTF (“sh*t hits the fan”) situations. If you can save more, that works… but we understand completely about limited finances, which is why we are attempting to keep the basics on the cheap!     Items available immediately and locally: Flashlights: At least one should be stored in every room of the house. Check the batteries monthly and change as needed. Batteries: Purchase multiple packages for your flashlight sizes, as many in all sizes as you can stock. Tip: they last much longer when stored in the freezer! Water: Often one finds oneself in a “dry” situation during SHTF. Make sure you ask your landlord (if you rent) exactly what utilities you will lose if the power goes out. For example: a residence in which we formerly lived still had water when we had no power. We had town water. However, we...

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Emergency Preparedness Issues and Solutions Series Part 1: Managing Your Phone for Crisis Situations

Posted by on Aug 29, 2016 in ChronicBabe Basics, coping, fears, featured, guest author, inspiration, practicalities | 1 comment

This post was guest-written by Team Blue (Kyrie-Inn Blue with help from Tao Blue, Service Dog, Canine Good Citizen; and Mijo, Service Dog In Training).     Often disabled folks are too busy trying to survive day to day that they neglect tackling the emergency preparedness necessities that may just save their lives, their health, their property, their sanity, and their independent living status. Where do you store your important documents? How can someone track you in a SHTF (“sh*t hits the fan”) situation? Do you have a plan in place for solid shelter if you face a storm? If so, what do you need to have on hand to create viability? Two weeks without power has faced Team Blue on multiple occasions. Let us help you avoid omissions in your checklists!!   Today’s topic: managing your phone for crisis situations 🙂   We all need to seriously evaluate our personal emergency preparedness on at least a quarterly basis, rather than wait until the weatherman predicts a “superstorm.” Emergencies of all kinds happen on a daily basis, even those that are un-weather- related, like fires, certain types of evacuations, identity theft, etc. Can you efficiently respond to rather than freeze in a crisis? Team Blue knows it’s easier said than done… unless you have taken the time to prepare, equip, and practice.     Cell phones If you do not have a cell phone, save your money so you can get the best plan and phone possible. Lifeline and Safelink offer phones at zero or minimal cost to people who are under an income limit and/or receive state services like Medicaid and SNAP. You can apply online at: www.safelinkwireless.com, www.assurancewireless.com and other sites as well. Have your phone on a charger as often as possible. It will not help you if it is not charged. Make sure you have at least two extra chargers, so you can have one in your BOB (“bug out bag” – to be discussed in a later post) and another in your bedroom. If you have a vehicle, get the 12-volt charger as well. You can charge your phone as you drive and also charge it from your car battery when electricity fails. (In these situations make sure to have the car idling so you do not kill your car battery.) Amazon.com has every charger out there at extremely reasonable prices. Often phone accessory bundles will save you even more money. Consider getting a small solar charger as well. We have used them often and saved ourselves countless times from a dead phone. Have your phone wherever you are. Turn it to vibrate or silent at bedtime, but do not leave it in another...

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Community Collab: What’s your bottle?

Posted by on Aug 19, 2016 in community collab, Creativity, featured, guest author, practicalities | 2 comments

This week we asked what water bottle do you swear by for our Question of the Week. Water bottles can be a super divisive topic and many people have specific brands they are crazy loyal to so it was awesome to see what you babes love! Here are some ideas for other babes to try out:   The Bobble This is my trusty bobble. Not only is it great for being able to filter water when you don’t have filtered water around, but it makes for the perfect infuser. I like to infuse strawberries, oranges, lemons, and limes and all the pulp stays in the bobble because of the filter! (Which is fantastic because I hate pulp.)   Liquid Solutions Travel Tea Tumbler   The Liquid Solutions Tea-Zer Tea Tumblr was suggested by Jennifer. You can infuse tea or fruit inside!   David’s Tea Glass Bottle Joanne sent us a picture of her David’s Tea glass bottle with a drink top and an inside filter. This one too can infuse fruit, herbs, or even loose tea!   Rubbermaid   Kyrie-Inn can’t have glass so the extensive Rubbermaid water bottle collection is perfect! They have every type of lid imaginable and are easy to clean out. She makes sure to drink two to three gallons of water a day to keep her blood volume up which is a good reminder to anyone reading to go drink some water!   S’well Pat is in love with the S’well bottle, which is one of the hottest water bottles on the market right now. (I see them everywhere and I’m so thankful that I now know the name of the maker!) S’well is great at keeping cold cold forever.   Teavana Stainless Steel Mug Denise is a visionary who saw how her stainless steel mug from Teavana kept tea hot for a super long time and decided to try it out with cold drinks as well. Luckily she found that it works just as well for cold water! She says even in the car it stays cool and fresh for hours.     Well babes, what do you think? Do you have a water bottle you love that wasn’t mentioned? Let us know in the comments below!     This post was written by Alix Kramer, ChronicBabe intern and proud...

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5 Reasons Why Leaving My Job and Working From Home Was The Best Decision I Ever Made

Posted by on Aug 15, 2016 in acceptance, career, coping, Creativity, featured, guest author, inspiration, pain, practicalities, resilience, self care, Work | 1 comment

This post was guest-written by Jennifer Kain Kilgore. Find her at her blog, Wear, Tear, & Care here. Hi! My name is Jen, and I’m a 29-year-old attorney, editor, writer, and patient advocate. I have spinal fractures from two car accidents that required two cervical fusions. The jury’s out on whether I’ll need more surgery. I worked in an office for three and a half years after law school. At that point I was dealing with the fallout from my first car accident, which happened in 2004 and decimated my thoracic spine. Law school happened, and then my job, and then… another accident. That second accident became a barrier to a normal life. Eventually I decided to leave my job and work from home. Here are the reasons why it was the best decision I ever made. My health comes first now. I was living the dream: I had a legal job that started at 8 am, ended around 6 pm, had great coworkers, and allowed for a life. My bosses were cool. During my second year, however, I had another car accident. The moment the pain set in, I knew I’d eventually have to leave the traditional workforce. In the year before I left I suffered from increasing pain (which caused repeated vomiting and a hernia), insomnia, loss of control of my hands, limping, muscle spasms, and loss of my ability to focus. In the end, it wasn’t worth it. Now, I telecommute from a recliner. I schedule my day around doctors’ appointments. I work a schedule that flows with when I’m feeling best. Before, there wasn’t time in the day to work on my health, so it controlled me. I am much happier.  The “What should I do?” questions wore down my family –  especially my husband. I steered every conversation in that direction because I wanted someone to say, “No, you can’t work.” I wanted someone to make that impossibly hard decision for me. My husband begged me to think about my health while I thought about finances. How could I leave without a backup plan? What if I made the wrong decision? So I did what is generally inadvisable. I started a side-hustle, working on sites like Upwork.com and Flexjobs.com to create a cushion for when I made the jump. I don’t know how I did that, because the level of pain at that point was inhuman. I think it’s because I knew that leaving was inevitable. Now, having the weight of that decision off my chest feels unbelievable. I can breathe. I can think. And with that, I can work. I’m not paralyzed. My body doesn’t rebel. The longer I stayed in the office, the more my body fought....

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How to rock your look despite chronic illness #AWAPwednesday

Posted by on Aug 10, 2016 in ChronicBabe Basics, coping, Creativity, featured, inspiration, practicalities, self care | 24 comments

One question y’all send me over and over is: How do I look less frumpy? I get it. Many of us kind of live in PJs and sweat pants. But after a while, that’s a real drag – kind of boring and frumpy and bland. Who wants that kind of lifestyle? You can do better, babe. With a few simple steps, you can begin to rock your look – YOUR look! – and you’ll feel more put-together, more human, and more ready to conquer the world despite illness.     *AWAP = As Well As Possible Now it’s your turn: What are YOUR strategies for creating a unique look? How do you save on awesome accessories? Do you think it’s important to rock a look even if you’re a sicko? Share your experience in the comments below. Want more #AWAPwednesday? Check out our #AWAPwednesday video playlist, which has more than 100 videos packed with practical advice, lots of humor, and bloopers. Lots of bloopers. Is there a question I can answer for YOU? Add it to the comments below, or shoot me an email. Until we meet again: Be AWAP! Smooches! (Loose) Transcript: Hi! I’m Jenni Grover Prokopy of ChronicBabe.com and today is AWAP Wednesday (that stands for As Well As Possible). Each week, I offer you my personal favorite tips and techniques to help you craft an incredible life beyond illness. Yes! I know you can. Subscribe to the ChronicBabe YouTube channel today to make sure you never miss another video, OK? One question y’all send me over and over is: How do I look less frumpy? I get it. Many of us kind of live in PJs and sweat pants. But after a while, that’s a real drag – kind of boring and frumpy and bland. Who wants that kind of lifestyle? You can do better, babe. With a few simple steps, you can begin to rock your look – YOUR look! – and you’ll feel more put-together, more human, and more ready to conquer the world despite illness. Pin it You’re using Pinterest, right? Time to create a board where you gather inspiration for your look. Don’t get intimidated by how put-together people are, or how much things cost; at this point, you’re just compiling a visual map for your look. Get comfy Once you’ve honed in a little bit on your look, consider more comfortable alternatives to some of the things you like. For example, I love a stylish black pant, but some days, I don’t want to wear anything tight – it flares me up. So I found some beautifully comfy black workout pants, grabbed a size up so they’re really flowy and drapey, and those are my go-to...

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I Am Sew Supportive

Posted by on Aug 1, 2016 in acceptance, community collab, coping, Creativity, featured, inspiration, practicalities, resilience | 3 comments

Post written by ChronicBabe Tracy Mooney   About a year and a half ago, I was talking to one of my sewing buddies on the phone. We both have autoimmune disorders and we were discussing the ways in which we set up our sewing rooms to accommodate our bad health days.   She said something like “It is unbelievable what we are willing to do just to keep sewing!”   I countered with “But we have already given up so much! Why would we give up something that brings us so much joy???”   As a senior editor for the quilting magazine Generation Q, I travel to buyer’s conventions like Quilt Market and VDTA/SDTA. I found myself often saying to manufacturers “You know, you can market this to people in wheelchairs, people with tremors, and people with arthritis.” Somewhere in these moments is where it became my unconscious mission to help our community keep sewing.   I realized the importance of continuing to do the things we love when faced with chronic illness. Being diagnosed with an incurable disease and facing chronic pain on the daily is incredibly difficult to process. It is so easy to fall into depression. It is so easy to give up hope.   Perhaps you sew, or love something else. Perhaps you are a runner, build models, paint, dance, garden, love woodworking, or car restoration – it doesn’t matter what your hobby is – it just matters that you keep doing it.   For me, I look for ways and products that help sewing enthusiasts modify the way they sew. This can be special glasses that help them see better, guides that fit on their machines to help keep the fabric steady, or even managing break time with ice breaks to minimize pain. What can you do to modify your favorite hobby ChronicBabe-style?   Recently, a friend of mine was experiencing a flare and found that she couldn’t join her running club. She was worried that she was missing out on social time with her friends and that they would move on without her. I suggested she look at other ways to participate. So she contacted the organizer and found they needed help setting up drinking stations. She was thrilled. She could still visit with her buds even if she couldn’t run because of a flare.   Some of my readers love quilting, but when they are in a flare don’t have the energy or physical stamina to sew. One creative ChronicBabe said she would stroke and refold her fabric collection. Another said she would sort and choose fabrics for her next project.     Be creative! Think outside the box! What is it...

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WE’RE NOT DOCS!

Info posted here should not be considered medical advice; it's not intended to replace consultation with physicians or other health care providers. 

Every Babe needs to find her own path for achieving optimal wellness. While we do tons to help guide you, it’s up to each of you to make well-informed choices and live with the consequences. ChronicBabe.com assumes no liability or responsibility for stuff that goes wrong.

Links to other web sites are provided as a service, but do not constitute endorsement of those sites by ChronicBabe.com; we are not responsible for their content. We do our best to find the most rockin’ resources but hey, we’re human.

Take what you like from this space, and leave the rest. Use what you learn to make your life better. Be responsible for your own choices. And please don’t sue us. XO!

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