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Community Collab: How do you cope with the changing seasons?

Posted by on Oct 21, 2016 in acceptance, community collab, coping, featured, inspiration | 6 comments

This time of year is the hardest seasonal transition for me. As the days grow darker and colder, I feel myself sinking into depression—and I have to work VERY hard to not let that take over. So I wondered this week: How are YOU coping with the changing seasons? Kirsten said “complaining about my knees like an old lady! nah mostly I get the lovely scarves out and bundle up a lot. Also lots of curling under my heatmat in bed lol” (which made me want to research the full-bed heating mats I’ve heard great things about…) Beannachd said “I usually get super psyched for Halloween. It is the best holiday season! But the thought of the cold and the pain has got me really down this year. I lost the entire month of August and half of September to a migraine (apparently generic Kroger brand Afrin and Flonase are NOT the brand name ingredients!!!) Took me a month and a half to figure it out. I’m still not 100%, so when the pain hit with the cold snap, I just wanted to cry. It’s been in the 70s and 80s here this week, though, so I’m laying out and baking the pain away while I can. It has helped me resign myself to sweaters and socks at night. So I am trying to get into the spirit of my favorite season – Halloween lights are up, and we may leave them up til spring! Spiderwebs and spooky things and watching Hocus Pocus and Nightmare Before Christmas – I totally want to be Sally! Mostly trying to enjoy what I can, and I’ll deal with the rest as it comes.” (which made me go pull out my halloween pumpkin, fill it with candy for the neighbors, and sneak a piece or two for myself…) Kyrie-Inn said “So much different in FL than it was in CT. Less adjustment. Miss my foliage though.” (which made me remember to appreciate the changing colors of all the trees around me here in Chicago…) Mary said “Here in Vegas the seasons don’t really change…” (which brought back fond memories of work trips there in January and February years ago, which offered me some respite from the snow and frosty temps here…) Delores said “I change the color of my blanket on the couch.” (which sounds like a dandy idea, so I went and swapped out the quilt on our living room couch…) And Laura simply said “Badly.” (which reminded me of how tough it is to cope, sometimes…) I hope this handful of interesting and fun ideas—and frank conversation about the realities we ChronicBabes face—is helpful to you. Feel free to continue to...

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5 Ways to Feel Sexy Even if You’re Sick #AWAPwednesday

Posted by on Oct 19, 2016 in ChronicBabe Basics, coping, featured, relationships, self care, sexuality | 2 comments

If you have chronic pain or illness, a decent part of your day is taken up with self-care and managing symptoms. Sometimes, you can get lost in that process, and forget that you’re also a sensual being. Today’s video includes five things I do all the time to maintain my sexy ChronicBabe side… and I’ll be curious to hear what works for you, too!     *AWAP = As Well As Possible Now it’s your turn: How do you nurture your sexy side? Tell me all about it in the comments below. Want more #AWAPwednesday? Check out our #AWAPwednesday video playlist, which has more than 100 videos packed with practical advice, lots of humor, and bloopers. Lots of bloopers. Is there a question I can answer for YOU? Add it to the comments below, or shoot me an email. Until we meet again: Be AWAP! Smooches! (Loose) Transcript: Oh, hey there. Hello. (Blows a kiss) Come sit down and let’s have a little chat, shall we, sugar?   Hi! I’m Jenni Grover Prokopy of ChronicBabe.com and today is AWAP Wednesday (that stands for As Well As Possible). Each week, I offer you my personal favorite tips and techniques to help you craft an incredible life beyond illness. Yes! I know you can. Subscribe to the ChronicBabe YouTube channel today to make sure you never miss another video, OK?   I’m sure you could tell from the intro that today, we’re talking about how to feel sexy even if you’re a sick chick. This is a challenge for me, and for many of us. If you have chronic pain or illness, a decent part of your day is taken up with self-care and managing symptoms. Sometimes, you can get lost in that process, and forget that you’re also a sensual being. For me, sexy is all about sensuality. Because I have fibromyalgia, my senses are always heightened to the max – that’s a huge part of the illness – so I often feel like I’m on overload, but mostly for BAD sensations. Embracing sensuality is about turning on your senses to all the GOOD sensations out there. It’ like pointing your little radar dish toward deliciousness. Here are a few ways I embrace sensuality in my day-to-day: When I wake up in the morning, I sometimes stretch and roll around in the bed like a cat. I try to embrace the languid nature of the wake-up time, enjoying that feeling of being in between asleep and awake. It’s lovely. I always put on some essential oils. You can buy these online from a number of retailers, and some grocery stores like Whole Foods carry them. You can go exotic, or you can go floral, or...

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Community Collab: What’s your personal mantra?

Posted by on Oct 14, 2016 in community collab, coping, featured, inspiration | 4 comments

Y’all! Y’all. You’re really inspiring me with this one. Each week, I host a community collaboration post on Facebook called Question of the Week (QOTW). This week: What’s your personal mantra? And you were not shy: + Peace is every step (that’s mine) + Arrange whatever pieces come your way. – Virginia Woolf (She was one of us) + We would never allow others to talk to us the way we talk to ourselves…. When my negative self talk is beating me up I just think if anyone else called me ugly, useless, pathetic etc. I’d throat punch them. So I can’t let myself do it either (bc throat punching myself would be hard.) + Whatever you *can* do is good enough (Abandon perfectionism and unrealistic expectations). + Breathe in the good and breathe out all the bullsh*t. + I’m. Not. Dead. This is my morning wake-up call. Life might be **** but I’m amazing. + Mine and my husband’s motto is onwards and upwards. Together is stronger xx + All you can do is all you can do and all you can do is enough (from a book of the same name) + I am one. I am whole. I am not my strengths. I am not my weaknesses. I am one. I am whole. + You gotta l-i-v-e, live! Otherwise, you got nothing to talk about in the locker room. – Maude, from Harold and Maude + A quote from Jesus’ Sermon on the Mount. It is “Each day has enough trouble of its own.” I frequently have to remind my husband and son, and myself, not to borrow trouble and to focus on the task(s) in front of me. I don’t have the time or energy to waste in worrying about how bad something COULD be. Dealing with one thing at a time keeps me sane. + You can do this. One step in front of the other. + Inch by Inch life is a cinch… Yard by Yard life is very hard… + Push out the jive, bring in the love. + It’s just what you do. – I got that from a 90-year-old man who takes care of his heavily disabled son. His son commutes to his janitorial job on the T and one day took the wrong train so every day this man waited at the wrong T stop in case his son made the mistake again. Every day. I told him he was a phenomenal father and he said, “It’s just what you do.” + She believed she could so she did + Tomorrow is another day. + You’ve got this. + I can’t. God can. Let’s go!! + Find the happy + Always forward. And then, at the end of the day, “this is life.” + Still I...

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How Losing My Baby Saved My Life

Posted by on Oct 10, 2016 in acceptance, coping, depression, featured, guest author, pain, resilience | 5 comments

This post was guest written by Dany Barrett-Santaniello.   The mysterious purple rash appeared on my upper right thigh about four months into my pregnancy. Here I was, forty-one and doing the seemingly improbable: I was having a baby! Previously, I had had a miscarriage while on vacation with my husband and three teenage boys, but this time the nurse had said those magic words: “I think this one’s planning on sticking around!” My elation was insatiable and I was in love with this baby, this boy, we had found out. When I showed the rash to my husband, he noted that it was beneath the skin and said it was probably hormone-related. I was incredibly tired (hey, pregnant lady in her forties, what do you expect?), my body hurt and the pregnancy began to get very arduous. I reminded myself that I was twenty-seven when I had my first child, so hey, forties and pregnant, suck it up! Nothing seemed to be out of place : swollen joints, but regular blood pressure, normal heartbeats at check ups, my boy was growing strong!   During the sixth month of my pregnancy, on a night when my husband was traveling, I felt an internal tug, a feeling that woke me out of a comatose-type of sleep. The pain was so intense that I could not sit up and it traveled down my right leg. After regaining my breath and bearings, I called my obgyn and received the news that as long as there was no spotting (Thank you, God, no spotting!), it was probably leg pains and I should rest tomorrow. I called into work and rested. The next day, my husband returned home. I had spent the day resting and was ready to return to work as an eighth grade English teacher. I hadn’t felt the baby move, but I tried not to be too concerned. That boy had to sleep sometime, right? Right?! The next morning, I started to feel pains deep in my womb as if the baby were pushing against my cervix. I went to work and was talking to a colleague when the pain became so bad that I had to brace myself against the door frame. He asked me if I was ok, and I assured him that I was. During the last period of the day, I was giving instructions to my students when I was overcome with what I realized were labor pains. I called the main office and they had a teacher cover the end of my class while I called my doctor and began the hour drive to the office. I started to intuitively breathe in short bursts and drive. I...

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How to plan for a future with chronic illness #AWAPwednesday

Posted by on Oct 5, 2016 in acceptance, coping, fears, featured, practicalities | 0 comments

“What if?” can really haunt us. When we live with chronic illness, every day is full of surprises, and sometimes those surprises sideline our lives. It makes planning for our life ahead – in spite of chronic illness – very challenging. But I have a simple concept for you to consider in today’s video that I hope will help you get over the “what if” challenge and make plans anyway.   *AWAP = As Well As Possible Now it’s your turn: Do you get stuck on “what if” sometimes? Have you ever created a contingency plan? Tell me all about it in the comments below. Want more #AWAPwednesday? Check out our #AWAPwednesday video playlist, which has more than 100 videos packed with practical advice, lots of humor, and bloopers. Lots of bloopers. Is there a question I can answer for YOU? Add it to the comments below, or shoot me an email. Until we meet again: Be AWAP! Smooches! (Loose) Transcript: But what if my feet hurt and I can’t wear cute shoes on my wedding day? But what if I don’t sell enough books to make a down payment for a new car? But what if? What if? Hi! I’m Jenni Grover Prokopy of ChronicBabe.com and today is AWAP Wednesday (that stands for As Well As Possible). Each week, I offer you my personal favorite tips and techniques to help you craft an incredible life beyond illness. Yes! I know you can. Subscribe to the ChronicBabe YouTube channel today to make sure you never miss another video, OK? “What if?” can really haunt us. When we live with chronic illness, every day is full of surprises, and sometimes those surprises sideline our lives. It makes planning for our life ahead – in spite of chronic illness – very challenging. But I have a simple concept for you to consider today that I hope will help you get over the “what if” challenge and make plans anyway. Everyone Has “What Ifs” Here’s a revelation. You ready? Everyone – and I mean EVERYONE – has “what ifs” in their lives. People with huge amounts of money have “what ifs.” People who are broke face “what ifs.” Folks who are perfectly healthy have “what ifs” that keep them up at night. We ChronicBabes are not alone with feeling “what if?” Over and over, I hear from women with illness who are afraid to plan, because they’re worried about “what if” this or that happens – and they consider it a trait of those with chronic illness. They often forget they’re not alone with this challenge. Remembering that everyone worries about what may or may not happen in life can help us stay calm, and find the courage to...

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You Don’t Need Wheels To Be A Derby Girl

Posted by on Oct 3, 2016 in acceptance, coping, Creativity, featured, guest author, inspiration, resilience | 2 comments

This post was guest written by ChronicBabe Sandra Gordon.   The Olympics has just finished and we are all sitting on our couches, thinking it might just be time to get up and do something. But then we think that’s easier said than done… or is it? I have Crohn’s disease. I diagnosed when I was 16 – quite a long time ago. When my symptoms hit, I had just achieved one of my best finishes in a 3K cross-country run, was curling regularly, was only a couple of years away from a black belt in karate, and was taking lifeguard training. Once I became ill, the most exercise I got was a quick dash to the bathroom. Six months later, things looked pretty different – in a good way. I gave up running and changed curling teams, but continued with karate, albeit at a slower pace. How was it possible? Open discussion with my sensei about what I could do and what I needed help with. I was allowed to sit down when needed and dash off to the bathroom without notice. I never got that black belt but I did have fun, and that was the point! I have been able to lead a pretty active life through good medication, diet, and surgeries (eventually a stoma in 2005). But I also know that is not the case for everyone. There is also a big difference in changing your expectations when you are 16 compared to 30 or 40. Back to getting off the couch: Now, I am a 40-something adult living in the third country in my life and working in the fourth. I don’t do karate, curling is not a thing here, and running… only for the bus. So what am I doing now? Roller derby, of course! But not how you think. I am a skating official (referee). This short essay can’t fit all the fun I have! But I can tell you life is different on the other side of sport. Behind every sporting event there are officials. Sometimes you need to be more able-bodied, and sometimes you just need to sit in a chair and understand the rules and the game. There are people who handle stats and organize players and officials on the day; they don’t have to have the most able bodies. There are also people who, before the event happens, book the hall, arrange the contracts with the teams, and arrange for sponsors and treasurers. Some of those positions don’t even require you to leave your house, but they are critical to making sporting events happen.   Non-competitive options for sport: That is where you, as a ChronicBabe, can come...

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Info posted here should not be considered medical advice; it's not intended to replace consultation with physicians or other health care providers. 

Every Babe needs to find her own path for achieving optimal wellness. While we do tons to help guide you, it’s up to each of you to make well-informed choices and live with the consequences. ChronicBabe.com assumes no liability or responsibility for stuff that goes wrong.

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