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Community Collab: Your favorite comfort foods

Posted by on Sep 12, 2016 in community collab, featured, inspiration, practicalities | 0 comments

This summer, we’ve been hosting Questions Of The Week (QOTW) on our Facebook page, and it’s been great to see what our community is into! Last week, we asked: what’s your favorite comfort food? Here are some of your responses: Jenni: Sushi, specifically spicy tuna maki! Sandra: Double-baked potatoes. Bake you tater without foil. Scoop out the inside, add butter and sour cream and fake bacon bits and cheese, if you like. Get it mashed together and put back in the skin. You can then bake it off for snacks or freeze for later. We make 8-10 big potatoes at a time and freeze for the days you just can organize more than reheat. Joanne: I’m Italian; comfort food is definitely pasta. Any kind of homemade pasta. For a really difficult day when sweetness is required, affogato is my go to, easy to make and comforting with autumn soon here. Here’s the basic recipe for Affogato: Place 2 small scoops of quality vanilla ice cream (you can replace vanilla flavor by coffee or chocolate ice cream) in a coffee cup, then pour in a shot of espresso or 3 tablespoons strong brewed coffee. Top with shaved dark chocolate and chopped hazelnuts. Jennifer: My comfort foods tend to fall into the soup/bowl food category. Miso Soup (South River Miso makes soy-free miso which is perfect for me), and Arroz Caldo (a savory chicken and rice porridge with garlic and ginger) in particular since they both sit very well on an upset stomach (for me). As far as sweet things, honey is my comfort sweet whether it’s in tea or just a small spoon. Kathy: Chicken rice or noodle soup. Preferably my mom’s! Lynette: Mexican food. (Oh, me too! – Jenni) Erin: This is really simple, but I love rye bread toast with [vegan] butter. It reminds me of my dad because that was his favorite kind of...

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Community Collab: Famous ChronicBabes

Posted by on Sep 2, 2016 in community collab, featured, inspiration | 2 comments

This week we asked “Who’s your favorite celebrity with a chronic illness?” Sometimes it’s so nice to see people in the public eye who are open about their illness. It’s inspiring! Here’s a roundup of your favorite celebs with chronic illness.   Fibromyalgia: Morgan Freeman Lupus: Selena Gomez, Toni Braxton, Nick Cannon Mental illness: Demi Lovato, Sarah Silverman, Kristen Bell, Jared Padalecki, Robin Williams Undiagnosed autoimmune disease: Sarah Ramey RA: Kathleen Turner Migraine: Marcia Cross IBD: Mike McCready of Pearl Jam, Hank Green, Kathleen Baker (Olympic swimmer), Shannen Doherty Sjogren’s: Venus Williams Endometriosis: Lena Dunham Celiac: Elisabeth Hasselbeck, Jennifer Esposito PCOS: Jillian Michaels Graves’ Disease: Missy Elliott...

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Emergency Preparedness Issues and Solutions Series Part 3: Creating a Bug Out Bag

Posted by on Aug 31, 2016 in community collab, coping, Creativity, featured, guest author, inspiration, practicalities, resilience | 0 comments

This post was guest-written by Team Blue (Kyrie-Inn Blue with help from Tao Blue, Service Dog, Canine Good Citizen; and Mijo, Service Dog In Training).     Often disabled folks are too busy trying to survive day to day that they neglect tackling the emergency preparedness necessities that may just save their lives, their health, their property, their sanity, and their independent living status. Where do you store your important documents? How can someone track you in a SHTF (“sh*t hits the fan”) situation? Do you have a plan in place for solid shelter if you face a storm? If so, what do you need to have on hand to create viability? Two weeks without power has faced Team Blue on multiple occasions. Let us help you avoid omissions in your checklists!!   Today’s topic: creating a Bug Out Bag (BOB)   We all need to seriously evaluate our personal emergency preparedness on at least a quarterly basis, rather than wait until the weatherman predicts a “superstorm.” Emergencies of all kinds happen on a daily basis, even those that are un-weather- related, like fires, certain types of evacuations, identity theft, etc. Can you efficiently respond to rather than freeze in a crisis? Team Blue knows it’s easier said than done… unless you have taken the time to prepare, equip,and practice.   Today’s topic: Creating a Bug Out Bag (BOB) (aka survival bag, aka GO bag, aka get-home bag, if anyone cares to search Google for further information and ideas!)   Today, we look at what one should stock in their BOB.   The Basics We should first define what a BOB is, how we prepare and use a BOB, and then you may adapt your BOB to serve your particular needs and situation. BOBs contain the supplies, documents, and whatever you need in case of emergencies, where you may be forced out of your residence or vehicle and need to stay safe until you may return to either, or until you can get to a safe location. We have found it helpful to have one centrally located in the house, clearly marked, so if we find ourselves needing to have people like our home health aides, case managers/case workers go get it, they can easily run in and grab it.   We choose backpacks of different colors to identify which BOB is for which situation (we need several). Our service dog has his own doggie backpack for outing and a messenger bag for his hospital/fire BOB. Choose the bag that suits your physicality best. Often one can find reasonably priced gently used backpacks or other styles of bags at thrift stores, or by posting a “want” on freecycle.com; if...

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Community Collab: What’s your bottle?

Posted by on Aug 19, 2016 in community collab, Creativity, featured, guest author, practicalities | 2 comments

This week we asked what water bottle do you swear by for our Question of the Week. Water bottles can be a super divisive topic and many people have specific brands they are crazy loyal to so it was awesome to see what you babes love! Here are some ideas for other babes to try out:   The Bobble This is my trusty bobble. Not only is it great for being able to filter water when you don’t have filtered water around, but it makes for the perfect infuser. I like to infuse strawberries, oranges, lemons, and limes and all the pulp stays in the bobble because of the filter! (Which is fantastic because I hate pulp.)   Liquid Solutions Travel Tea Tumbler   The Liquid Solutions Tea-Zer Tea Tumblr was suggested by Jennifer. You can infuse tea or fruit inside!   David’s Tea Glass Bottle Joanne sent us a picture of her David’s Tea glass bottle with a drink top and an inside filter. This one too can infuse fruit, herbs, or even loose tea!   Rubbermaid   Kyrie-Inn can’t have glass so the extensive Rubbermaid water bottle collection is perfect! They have every type of lid imaginable and are easy to clean out. She makes sure to drink two to three gallons of water a day to keep her blood volume up which is a good reminder to anyone reading to go drink some water!   S’well Pat is in love with the S’well bottle, which is one of the hottest water bottles on the market right now. (I see them everywhere and I’m so thankful that I now know the name of the maker!) S’well is great at keeping cold cold forever.   Teavana Stainless Steel Mug Denise is a visionary who saw how her stainless steel mug from Teavana kept tea hot for a super long time and decided to try it out with cold drinks as well. Luckily she found that it works just as well for cold water! She says even in the car it stays cool and fresh for hours.     Well babes, what do you think? Do you have a water bottle you love that wasn’t mentioned? Let us know in the comments below!     This post was written by Alix Kramer, ChronicBabe intern and proud...

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QOTW: What’s in your drink?

Posted by on Aug 12, 2016 in community collab, Creativity, featured, guest author, inspiration, self care | 3 comments

This week we asked for your favorite cocktail and mocktail recipes and you gave us some amazing ideas to try! Here are some great summer cocktail and mocktails.   Homemade Lemonade Thanks Upala for this crazy awesome recipe! You need:  The juice of 1 large orange The juice of 2 lemons The juice of 3 limes Spring or filtered water Approx. 3/4 cup of cane sugar (or white sugar, honey, agave if you prefer) To make: Boil a little water first in the teapot and let it cool a bit Mix in the fruit juices Dissolve in sugar and add more sugar until you achieve desired sweetness Add garnishes: orange, lemon, lime slices, fresh mint leaves, muddled mint, etc. Chill or add ice If you’re in the mood Add tequila and a splash of orange liqueur OR some light rum Make it bubbly with some seltzer water   Lemon Drop Cocktail Thanks Tonya for this super easy recipe! For 2 drinks, mix: 3 Meyer lemons 4-5 oz. vodka simple syrup   Fake Outs Thanks Tracy for these great ideas! If you want a mocktail that looks like a cocktail here are some ideas: For a “fake” cranberry + vodka: cranberry juice and diet Gingerale! For a “fake” gin + tonic: seltzer with a lime! (I’ve heard from my cousin that this one works well.)   Espresso Martini Thanks Gemma for this pick-me-up cocktail! Mix (vigorously): 50 ml vodka 35 ml coffee liqueur 1 shot of espresso Ice   Summer Delight Thank you Genevieve for this delightfully simple recipe. Mix: Raspberry lemonade Peach vodka Yum!   Fancy Water Peggysue gives a lot of great infusion ideas for water. Mix any fruit (except bananas) in water or sparkling water. You can add spices based off your taste. Carry around in a mason jar! Cantaloupe and mush melon are great for hotter weather. I’ve been really into infusing my water lately and my favorites are strawberry with fizzy water; lemon, lime, and orange in still water; and grapefruit and rosemary in still water!   What’s in your drink, babes? Any other great mocktail or cocktail ideas for the summer? Have you tried any of these drinks yourself? What did you think? Let us know in the comments below!   Post written by Alix Kramer, ChronicBabe intern and proud...

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I Am Sew Supportive

Posted by on Aug 1, 2016 in acceptance, community collab, coping, Creativity, featured, inspiration, practicalities, resilience | 3 comments

Post written by ChronicBabe Tracy Mooney   About a year and a half ago, I was talking to one of my sewing buddies on the phone. We both have autoimmune disorders and we were discussing the ways in which we set up our sewing rooms to accommodate our bad health days.   She said something like “It is unbelievable what we are willing to do just to keep sewing!”   I countered with “But we have already given up so much! Why would we give up something that brings us so much joy???”   As a senior editor for the quilting magazine Generation Q, I travel to buyer’s conventions like Quilt Market and VDTA/SDTA. I found myself often saying to manufacturers “You know, you can market this to people in wheelchairs, people with tremors, and people with arthritis.” Somewhere in these moments is where it became my unconscious mission to help our community keep sewing.   I realized the importance of continuing to do the things we love when faced with chronic illness. Being diagnosed with an incurable disease and facing chronic pain on the daily is incredibly difficult to process. It is so easy to fall into depression. It is so easy to give up hope.   Perhaps you sew, or love something else. Perhaps you are a runner, build models, paint, dance, garden, love woodworking, or car restoration – it doesn’t matter what your hobby is – it just matters that you keep doing it.   For me, I look for ways and products that help sewing enthusiasts modify the way they sew. This can be special glasses that help them see better, guides that fit on their machines to help keep the fabric steady, or even managing break time with ice breaks to minimize pain. What can you do to modify your favorite hobby ChronicBabe-style?   Recently, a friend of mine was experiencing a flare and found that she couldn’t join her running club. She was worried that she was missing out on social time with her friends and that they would move on without her. I suggested she look at other ways to participate. So she contacted the organizer and found they needed help setting up drinking stations. She was thrilled. She could still visit with her buds even if she couldn’t run because of a flare.   Some of my readers love quilting, but when they are in a flare don’t have the energy or physical stamina to sew. One creative ChronicBabe said she would stroke and refold her fabric collection. Another said she would sort and choose fabrics for her next project.     Be creative! Think outside the box! What is it...

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