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Emergency Preparedness Issues and Solutions Series Part 1: Managing Your Phone for Crisis Situations

Posted by on Aug 29, 2016 in ChronicBabe Basics, coping, fears, featured, guest author, inspiration, practicalities | 1 comment

This post was guest-written by Team Blue (Kyrie-Inn Blue with help from Tao Blue, Service Dog, Canine Good Citizen; and Mijo, Service Dog In Training).     Often disabled folks are too busy trying to survive day to day that they neglect tackling the emergency preparedness necessities that may just save their lives, their health, their property, their sanity, and their independent living status. Where do you store your important documents? How can someone track you in a SHTF (“sh*t hits the fan”) situation? Do you have a plan in place for solid shelter if you face a storm? If so, what do you need to have on hand to create viability? Two weeks without power has faced Team Blue on multiple occasions. Let us help you avoid omissions in your checklists!!   Today’s topic: managing your phone for crisis situations 🙂   We all need to seriously evaluate our personal emergency preparedness on at least a quarterly basis, rather than wait until the weatherman predicts a “superstorm.” Emergencies of all kinds happen on a daily basis, even those that are un-weather- related, like fires, certain types of evacuations, identity theft, etc. Can you efficiently respond to rather than freeze in a crisis? Team Blue knows it’s easier said than done… unless you have taken the time to prepare, equip, and practice.     Cell phones If you do not have a cell phone, save your money so you can get the best plan and phone possible. Lifeline and Safelink offer phones at zero or minimal cost to people who are under an income limit and/or receive state services like Medicaid and SNAP. You can apply online at: www.safelinkwireless.com, www.assurancewireless.com and other sites as well. Have your phone on a charger as often as possible. It will not help you if it is not charged. Make sure you have at least two extra chargers, so you can have one in your BOB (“bug out bag” – to be discussed in a later post) and another in your bedroom. If you have a vehicle, get the 12-volt charger as well. You can charge your phone as you drive and also charge it from your car battery when electricity fails. (In these situations make sure to have the car idling so you do not kill your car battery.) Amazon.com has every charger out there at extremely reasonable prices. Often phone accessory bundles will save you even more money. Consider getting a small solar charger as well. We have used them often and saved ourselves countless times from a dead phone. Have your phone wherever you are. Turn it to vibrate or silent at bedtime, but do not leave it in another...

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How to Roll with the Punches If You Have Chronic Illness #AWAPwednesday

Posted by on Aug 24, 2016 in ChronicBabe Basics, coping, featured, inspiration, resilience | 7 comments

Surprise! You’re having a flare-up. Surprise! Your insurance changed its coverage of your meds. Sound familiar? I know it does! Chronic illness is a daily series of surprises. Babe, sometimes you’ve gotta roll with the punches. Today’s video has a few of my favorite tips for doing that.  *AWAP = As Well As Possible Now it’s your turn: What things help you keep rolling even when life wants to knock you down? Share your experience in the comments below. Want more #AWAPwednesday? Check out our #AWAPwednesday video playlist, which has more than 100 videos packed with practical advice, lots of humor, and bloopers. Lots of bloopers. Is there a question I can answer for YOU? Add it to the comments below, or shoot me an email. Until we meet again: Be AWAP! Smooches! (Loose) Transcript: Hi! I’m Jenni Grover Prokopy of ChronicBabe.com and today is AWAP Wednesday (that stands for As Well As Possible). Each week, I offer you my personal favorite tips and techniques to help you craft an incredible life beyond illness. Yes! I know you can. Subscribe to the ChronicBabe YouTube channel today to make sure you never miss another video, OK? Last weekend I was booked to fly home from a family visit in Houston and our flight was majorly delayed. We got the call 10 minutes away from the airport, and an hour away from my family’s house; we had an extra three hours to kill before our rescheduled flight. I was PISSED. The delay meant I would get home and climb in bed more than four hours later than usual, which is a big bummer for my health. I knew I’d have a flare-up the day after, possibly for many days after – and what a cruddy way to end my awesome fun trip! Ugh. But I had a choice in that moment: I could pout, grumble, be irritable. Or I could roll with the punches. Do I have to roll with every punch? Nope – some are just too extreme. You are entitled to some strong reactions to big ol’ punches. But also: You get to choose how you react. See this tattoo? [Picture of Jenni’s left inner arm.] It says “peace is every step,” the title of my favorite book by my spiritual teacher Thich Nhat Hanh. I need this daily reminder, that I get to choose how I’ll react to things. So I tried to react with peace. My brother-in-law and fiancee found a bowling alley near the airport, and we headed over to have “pin and tonics” and bowl with my nieces, which was HILARIOUS. In the end, I was glad for the extra time.   Flexibility is key I hate bowling. A broken...

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Why we MUST break through the taboos of chronic illness #AWAPwednesday

Posted by on Aug 17, 2016 in acceptance, ChronicBabe Basics, fears, featured | 9 comments

Poop. That’s right, I said it. Poop. You can’t stop me! Poop! We have a lot of taboos in our society, things we’re not supposed to talk about. But silence slows down progress and cuts off support. Today, I want to talk about why we must break the taboos we all face with illness. Watch today’s video now for some really – I mean REALLY – frank talk about my own experience with breaking the “poo taboo.” *AWAP = As Well As Possible Now it’s your turn: What taboos are you breaking? Which ones do you wish people would get over? Share your experience in the comments below. Want more #AWAPwednesday? Check out our #AWAPwednesday video playlist, which has more than 100 videos packed with practical advice, lots of humor, and bloopers. Lots of bloopers. Is there a question I can answer for YOU? Add it to the comments below, or shoot me an email. Until we meet again: Be AWAP! Smooches! (Loose) Transcript: Hi! I’m Jenni Grover Prokopy of ChronicBabe.com and today is AWAP Wednesday (that stands for As Well As Possible). Each week, I offer you my personal favorite tips and techniques to help you craft an incredible life beyond illness. Yes! I know you can. Subscribe to the ChronicBabe YouTube channel today to make sure you never miss another video, OK? We have a lot of taboos in our society, things we’re not supposed to talk about. It was only a generation ago that no one said the word cancer out loud – we had to whisper it. My generation saw the rise of HIV and AIDS, and for many years most people were silent about being HIV-positive – but that did nothing to help the community. I understand why people were silent – they needed to protect their careers, their personal safety, their families – but silence slows down progress and cuts off support. Today, I want to talk about why we must break the taboos we all face with illness. The Poo Taboo and the Isolation Problem My intern, Alix, has irritable bowel disease or IBD. She introduced me to a new phrase yesterday, which I can’t believe I hadn’t heard before: the poo taboo. I grew up in a household of mouthy ladies and we talked about everything, so poo was never a taboo. But some people are REALLY hung up on talking about poop. We’re afraid to talk about our butts, which is weird, because most people have no problems talking about other bodily fluids. But butt stuff gets us all freaked out. This causes isolation. Here’s a personal example from my life: I recently crapped myself. Yup! I said it. I got some kind of GI bug...

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How to rock your look despite chronic illness #AWAPwednesday

Posted by on Aug 10, 2016 in ChronicBabe Basics, coping, Creativity, featured, inspiration, practicalities, self care | 24 comments

One question y’all send me over and over is: How do I look less frumpy? I get it. Many of us kind of live in PJs and sweat pants. But after a while, that’s a real drag – kind of boring and frumpy and bland. Who wants that kind of lifestyle? You can do better, babe. With a few simple steps, you can begin to rock your look – YOUR look! – and you’ll feel more put-together, more human, and more ready to conquer the world despite illness.     *AWAP = As Well As Possible Now it’s your turn: What are YOUR strategies for creating a unique look? How do you save on awesome accessories? Do you think it’s important to rock a look even if you’re a sicko? Share your experience in the comments below. Want more #AWAPwednesday? Check out our #AWAPwednesday video playlist, which has more than 100 videos packed with practical advice, lots of humor, and bloopers. Lots of bloopers. Is there a question I can answer for YOU? Add it to the comments below, or shoot me an email. Until we meet again: Be AWAP! Smooches! (Loose) Transcript: Hi! I’m Jenni Grover Prokopy of ChronicBabe.com and today is AWAP Wednesday (that stands for As Well As Possible). Each week, I offer you my personal favorite tips and techniques to help you craft an incredible life beyond illness. Yes! I know you can. Subscribe to the ChronicBabe YouTube channel today to make sure you never miss another video, OK? One question y’all send me over and over is: How do I look less frumpy? I get it. Many of us kind of live in PJs and sweat pants. But after a while, that’s a real drag – kind of boring and frumpy and bland. Who wants that kind of lifestyle? You can do better, babe. With a few simple steps, you can begin to rock your look – YOUR look! – and you’ll feel more put-together, more human, and more ready to conquer the world despite illness. Pin it You’re using Pinterest, right? Time to create a board where you gather inspiration for your look. Don’t get intimidated by how put-together people are, or how much things cost; at this point, you’re just compiling a visual map for your look. Get comfy Once you’ve honed in a little bit on your look, consider more comfortable alternatives to some of the things you like. For example, I love a stylish black pant, but some days, I don’t want to wear anything tight – it flares me up. So I found some beautifully comfy black workout pants, grabbed a size up so they’re really flowy and drapey, and those are my go-to...

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Don’t take this personally, but… #AWAPwednesday

Posted by on Aug 3, 2016 in ChronicBabe Basics, featured, friends and family, relationships, resilience | 0 comments

It is very easy to take the criticism of others personally. Trust me: As a public person, I receive a lot of criticism, so I’m continually learning how to NOT take it personally. In today’s video, I share a few things that help me keep my distance from the opinions of others: *AWAP = As Well As Possible Now it’s your turn: How have you shrugged off rude comments from others? How do you stop yourself from taking things personally? Share your experience in the comments below. Want more #AWAPwednesday? Check out our #AWAPwednesday video playlist, which has more than 100 videos packed with practical advice, lots of humor, and bloopers. Lots of bloopers. Is there a question I can answer for YOU? Add it to the comments below, or shoot me an email. Until we meet again: Be AWAP! Smooches! (Loose) Transcript: No offense, but… (insert something offensive) Don’t take this personally, but… (insert something definitely personal) It’s not a big deal but… (insert something that’s a big deal) Step one of learning how to not take things personally: earplugs as soon as you hear those warning phrases! (off-screen: Alix: Don’t take this personally, but…)   Hi! I’m Jenni Grover Prokopy of ChronicBabe.com and today is AWAP Wednesday (that stands for As Well As Possible). Each week, I offer you my personal favorite tips and techniques to help you craft an incredible life beyond illness. Yes! I know you can. Subscribe to the ChronicBabe YouTube channel today to make sure you never miss another video, OK? It is very easy to take the criticism of others personally. Trust me: As a public person, I receive a lot of criticism, so I’m continually learning how to NOT take it personally. Here are a few things that help me keep my distance from the opinions of others: They’ve got baggage Every person who criticizes you has their own baggage, their own history, which impacts how they behave. It can be challenging, but maintaining some perspective on their background can help you shirk off their critique. For example: Let’s say one of your friends is really harshing on how you talk to your significant other. Yes, it stings! But: She’s going through a divorce, so she’s probably projecting her own frustrations or fears, unintentionally. So perhaps instead of letting her criticism stick with you, you can try to release it, knowing it’s not about you. It’s not about you Speaking of “it’s not about you,” we often interpret things other people say as being aimed at us, when in fact, it has nothing to do with us. For example: Let’s say you’re at the doctor’s office and the nurse puts you on the scale. “I see you’ve...

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How to look really good even if you feel really bad #AWAPwednesday

Posted by on Jul 27, 2016 in ChronicBabe Basics, coping, featured, resilience, self care | 2 comments

  Being a ChronicBabe often means we have to make sacrifices—and that can mean we spend more time managing our symptoms and less time primping and practicing good self-care. No more! I dare you to look good. I know you can. Here are my six favorite tips for looking good even when you feel really bad. It will boost your mood, sugar—promise. *AWAP = As Well As Possible Now it’s your turn: How about you: How do you preserve your self-care routine even if you’re flaring up? Share your experience in the comments below. Want more #AWAPwednesday? Check out our #AWAPwednesday video playlist, which has more than 100 videos packed with practical advice, lots of humor, and bloopers. Lots of bloopers. Is there a question I can answer for YOU? Add it to the comments below, or shoot me an email. Until we meet again: Be AWAP! Smooches! (Loose) Transcript: My throat is scratchy, my fibro is flaring, and I definitely did not get enough sleep… But I look amazing. And I feel amazing, in part, because I look amazing. Today, I’m going to help you look fabulous, too. Hi! I’m Jenni Grover Prokopy of ChronicBabe.com and today is AWAP Wednesday (that stands for As Well As Possible). Each week, I offer you my personal favorite tips and techniques to help you craft an incredible life beyond illness. Yes! I know you can. Subscribe to the ChronicBabe YouTube channel today to make sure you never miss another video, OK?   All of us have days when we feel like crud, even non-ChronicBabes. But you’ve heard the phrase “fake it til you make it,” right? There’s real truth there, my loves. There are six things I do on crummy days that help me to feel gorgeous, which lifts my mood and helps me project an air of confidence and does wonders for my self-esteem. Here we go: Wash my face Even if I don’t have the time or energy to take a full shower, I wash my face and moisturize. Always. Put on mascara Some of you don’t wear makeup, and that’s cool, but some of us do. My little eyelashes are blonde, so when I don’t have mascara on, my eyes look really tired. So a quick coat of mascara does wonders. Put on real clothes As ChronicBabes, many of us spend most of our lives in PJs. Trust me–I loooove a good PJ pant. But on really crummy days when I want to feel beautiful in spite of my symptoms, I wave buh-bye to PJ pants and throw on a cute dress. It’s an easy way to feel “put together” in just one quick change. Drink water This is so simple and may...

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Info posted here should not be considered medical advice; it's not intended to replace consultation with physicians or other health care providers. 

Every Babe needs to find her own path for achieving optimal wellness. While we do tons to help guide you, it’s up to each of you to make well-informed choices and live with the consequences. ChronicBabe.com assumes no liability or responsibility for stuff that goes wrong.

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Take what you like from this space, and leave the rest. Use what you learn to make your life better. Be responsible for your own choices. And please don’t sue us. XO!

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