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How to say “no” when someone keeps buggin’ you with questions about chronic illness #AWAPwednesday

Posted by on Feb 1, 2017 in ChronicBabe Basics, featured, friends and family, ranting, relationships, self care | 2 comments

Do you get tired of people asking you to justify self-care? Are you sick of answering probing questions about “what’s wrong now?” when you need to reschedule something? Me, too! Today I’ve got my favorite phrases for shutting down those conversations and moving into more productive territory: I think this is something we all deal with, so I came up with a bunch of tips to help you – adapt them to your particular needs. *AWAP = As Well As Possible Now it’s your turn: How do YOU handle conversations where people push back when you set boundaries? I want to know! Tell me all about it in the comments below. Want more #AWAPwednesday? Check out our #AWAPwednesday video playlist, which has more than 130 videos packed with practical advice, lots of humor, and bloopers. Lots of bloopers. Is there a question I can answer for YOU? Add it to the comments below, or shoot me an email. Until we meet again: Be AWAP! Smooches!   (Rough) Transcript: Aw, thanks, but I’ve gotta wash my hair. Gee, that’s a nice invitation, but I have another commitment. Wow, you’re tenacious — thanks, but no thanks. Aw, hell no! Hi! I’m Jenni Grover Prokopy of ChronicBabe.com and today is AWAP Wednesday (that stands for As Well As Possible). Each week, I offer you my personal favorite tips and techniques to help you craft an incredible life beyond illness. Yes! I know you can. Subscribe to the ChronicBabe YouTube channel today to make sure you never miss another video, OK?   Today I want to talk to you about saying no to people when they won’t stop buggin’ you about your chronic illness (or limitations related to it). I was talking with a friend the other day, and she lives in a community where people really push and push if you say no — they demand an explanation. I think that’s baloney! Most of the time, when you say “no” to someone, you don’t owe them a detailed explanation. But people can really make us feel like we have to explain ourselves. Today, I’m sharing a few strategies I’ve learned through the years that shut down unwanted conversations. Let’s say you need to cancel a coffee date with a girlfriend because you’re having a flare-up. You call her and say “I’m having a flare-up, so I’m sorry but I need to reschedule.” She responds with: “But why? I thought you were fine yesterday?” You could: Go into a lengthy explanation of your unpredictable chronic illness and its daily attempts to steal your fun. (That can be a real downer for both of you!) You could get defensive, and end the call abruptly. (That could damage your friendship!) Or… You...

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How to find hope during difficult times with chronic illness #AWAPwednesday

Posted by on Jan 25, 2017 in ChronicBabe Basics, coping, depression, featured, self care | 8 comments

Hello, there! I’m so happy to be back with a fresh video for the new year, all about the little things I’m doing daily to find hope: Yesterday, I was feeling SO down. The world is just bonkers right now, and it’s hard to stay positive when I see bad news every single day. That’s on top of living with chronic pain and its unpredictable, totally sucky nature! So try as I might, sometimes I just get really low. So yesterday I did a handful of things that really helped. Probably just one would have done the trick, but… I never like to do things halfway, so I did a bunch of them. This week’s #AWAPwednesday video shares all the details. I hope they inspire you to come up with your own list of hopeful activities! *AWAP = As Well As Possible Now it’s your turn: What kinds of things are YOU doing to inspire hope in your day-to-day?  I want to know! Tell me all about it in the comments below. Want more #AWAPwednesday? Check out our #AWAPwednesday video playlist, which has more than 130 videos packed with practical advice, lots of humor, and bloopers. Lots of bloopers. Is there a question I can answer for YOU? Add it to the comments below, or shoot me an email. Until we meet again: Be AWAP!...

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How to be a great significant other to a person with illness #AWAPwednesday

Posted by on Nov 30, 2016 in caregivers, ChronicBabe Basics, featured, relationships | 14 comments

Hey, sick chick! So glad you found this video. Now, press pause and go get your significant other, or your SO. I’ll wait. OK, great! Hi there. I’m so excited to talk to BOTH of you. This week’s video is the last of 2016, and it’s for all those folks who love us ChronicBabes: husbands, wives, spouses, partners, girlfriends, boyfriends, lovers… this video is packed with advice for how to be a great significant other (SO) to a woman with chronic illness. I hope you find the advice helpful, and I encourage you share this video with anyone who might benefit: *AWAP = As Well As Possible Now it’s your turn: How do YOU support your ChronicBabe? How does your SO support you, babelicious? I want to hear from both of you! Tell me all about it in the comments below. Want more #AWAPwednesday? Check out our #AWAPwednesday video playlist, which has more than 130 videos packed with practical advice, lots of humor, and bloopers. Lots of bloopers. Is there a question I can answer for YOU? Add it to the comments below, or shoot me an email. Until we meet again: Be AWAP! Smooches! (Loose) Transcript: Hi! I’m Jenni Grover Prokopy of ChronicBabe.com and today is AWAP Wednesday (that stands for As Well As Possible). Each week, I offer you my personal favorite tips and techniques to help you craft an incredible life beyond illness. Yes! I know you can. Subscribe to the ChronicBabe YouTube channel today to make sure you never miss another video, OK? Checking in Everyone gets a little embarrassed about feeling sick and can feel afraid to burden friends and family with problems. That’s where you come in. Once a day, you should check in with your SO and ask how she’s doing and if there’s anything you can do to help. Sometimes she’s really, really hoping for some help but won’t ask for it because she doesn’t want to create extra work for you. Checking in is a good way to let her know you are always willing to make the time to help her and show that you’re there for her. Listening Sometimes we just need a shoulder to cry on. Seriously. It’s understandable that you’ll want to problem-solve, because you hate to see your SO in pain or sad. But try not to assume that’s always the best move. When your SO brings up a tough subject or challenge, consider asking this question: “How can I help you right now?” She might say “I just need you to listen so I can get this off my chest.” There will be time for problem-solving later. Be a battle buddy I recently spoke to a U.S. Army war veteran,...

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3 Weird Sounds to Make When You Feel Bad #AWAPwednesday

Posted by on Nov 2, 2016 in coping, featured, humor, inspiration, pain, resilience | 11 comments

When I’m doing my morning yoga routine, I hurt. And I tend to moan and groan a little as I ease into poses. But sometimes, I get so sick of hearing myself moan and groan. And on days when I feel my depression creeping in on top of the pain and fatigue of fibromyalgia, moans and groans can make my heart hurt, too. So I came up with three fun sounds to make instead to crack myself up. I think they’ll help you, too—at the very least, you’ll have a laugh! *AWAP = As Well As Possible Now it’s your turn: How do YOU crack yourself up when you’re struggling? Tell me all about it in the comments below. Want more #AWAPwednesday? Check out our #AWAPwednesday video playlist, which has more than 100 videos packed with practical advice, lots of humor, and bloopers. Lots of bloopers. Is there a question I can answer for YOU? Add it to the comments below, or shoot me an email. Until we meet again: Be AWAP! Smooches! (Loose) Transcript: (Jenni making weird sounds) Hi! I’m Jenni Grover Prokopy of ChronicBabe.com and today is AWAP Wednesday (that stands for As Well As Possible). Each week, I offer you my personal favorite tips and techniques to help you craft an incredible life beyond illness. Yes! I know you can. Subscribe to the ChronicBabe YouTube channel today to make sure you never miss another video, OK? Sometimes when I’m doing my morning yoga routine, I hurt. OK, fine – let’s be real – I always hurt when I’m doing my morning yoga. And I tend to moan and groan a little as I ease into poses. My beau, Joe, is used to this. Sometimes I feel bad, because I know it must make him feel uncomfortable to hear me groaning so much – but when I say “I’m sorry,” his response is always, “babe, don’t apologize – you’ve gotta express that pain so you can let it out.” (He is so smart!) But sometimes, even I am sick of hearing myself moan and groan. And on days when I feel my depression creeping in on top of the pain and fatigue of fibromyalgia, moans and groans can make my heart hurt, too. So I came up with three fun sounds to make instead to crack myself up. The sounds are really simple. First: cartoon horn. Ah ooo gah! Just imagine shouting that as you feel pain, instead of sighing, or moaning. Ah ooo gah! Next up: karate sounds. Hiyah! Just imagine you are bending over to pick up something and your back twinges. Instead of groaning, a little hiyah! can really hit the spot. Finally, try this one out: Hey-oh! This one is just...

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Stone soup: How to create something from nothing when you have chronic illness

Posted by on Oct 31, 2016 in coping, Creativity, guest author | 10 comments

This post was guest written by Therese Kay. What is Stone Soup? Stone Soup is created from “nothing.”  Several variations of this old folk tale exist, but here’s the gist:  A couple of hungry travelers venture upon a town asking for food.  The townspeople refuse to feed them, claiming that all their food has been eaten or needed.  The travelers convince the town to feed them by making stone soup.  They build a fire and ask for a pot.  Filling the pot with water and a stone, they proceed to “cook.”  At this point, he travelers say, “It’s wonderful and we’ll share!  We just need a few things to make it delicious.”  A carrot, some seasonings, a bit of potato… you get it.  Remove the stone, and – Voila!  Soup!  The travelers tricked the villagers into sharing their food and they created a tasty and nutritious soup to share with everyone. Assess Your Soup Pot Hungry for some soup?  A tasty and nutritious life?  Let’s get busy!  Yes, you may only have a stupid stone and you’ll have to use one of your precious spoons to do it, but the results will be worth it! First, what’s in your soup pot?  Just that stupid stone?  Mystery ingredients?  Gross stuff? Take a full inventory.  Be sure to scour all of your “shelves.”  You probably have ingredients hidden about that could make life pretty tasty.   Skills?   Resources?   Friends and family?   Medical team?   List them all.  Sometimes we forget about some ingredients.  The limit of what you can add to your soup is your imagination – and the imaginations of the people who we allow to add to our soup! Get Others to Add Ingredients In order to make a nice soup, we need a bit of help.  Very few of us have all of the ingredients we need to make the tastiest most nutritious soup to feed ourselves.  How can you convince the villagers of your life to share their ingredients?  Remember, in the fable, the travelers didn’t simply rely on the villagers’ curiosity, the said what they needed! So, the best way to get those ingredients? Get cooking with what you have!  Build the fire, put on the pot, plop in the stone.  The villagers will be curios. Likely, they will begin offering what they have to add to your soup.  Don’t be afraid to make suggestions – ask for what you want and need.  If you want a carrot, ask for a carrot.   The best way to get help is to start helping ourselves and then inviting others.  Action begets action.   How Do We Keep Out Unwanted Ingredients? Uh-oh.  Here comes a villager...

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Info posted here should not be considered medical advice; it's not intended to replace consultation with physicians or other health care providers. 

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