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A brief list of the ways in which I’m flared up a.k.a. fibromyalgia is a beast but I’m still trying to be #AWAPwednesday

Posted by on May 3, 2017 in acceptance, featured, pain, resilience | 16 comments

Babes, you know my usual way is to share lots of uplifting videos and posts, but today it’s less about uplifting and more about realism and a reminder that you are worth taking care of. Some days, it’s enough to get on the computer for a bit and clear some emails. Today, for instance. That’s about all I can manage, work-wise. And this here blog post. That’s what AWAP (As Well As Possible) looks like for me today. I’ve lived with fibromyalgia for almost 20 years now, and I’m amazed at how disabling it can be. After many years of trial and error, I feel like I have it pretty well managed and I’m mostly able to work normal hours and get my business done. But on days like today, I am humbled by this ridiculous condition. I’m flared to the max; it’s like every system in my body is inflamed. Here is a brief list of the ways in which I’m flared up by the fibro-beast today, starting from the feet up: My right foot is sore in a muscular pain way, making it painful to walk. I think it’s because I did some machine sewing last weekend, using the pedal to run the machine as usual. How dare I make crafts! A bruise I got from my shoe being too tight (!!!) has spread over most of my ankle. I’m in dire need of a pedicure. (Oh wait, that’s not fibro’s fault.) My knees are sore, and I have a tingling sensation in my right thigh—and not in the fun way. My lower back is stiff and sore, and no matter how many yoga poses I try, stretches I do, or heat I apply, I can’t get it to calm down. My hips are stiff and crackly. I tried doing some belly dance moves this morning to open them up, but no dice. (Although I think I looked pretty cute while doing them!) My skin is itchy all over. There’s no evidence of a rash, and I’ve applied anti-itch cream a bunch of places, but it isn’t making a difference. In any case, a full-body dip in calamine lotion is just not an option today. My shoulders and neck are stiff and sore, and that’s translating down into my hands, which are also very sore and unhappy that I’m using them on a keyboard. Too bad, hands! I have an area of irritation on my stomach that has no visible explanation, but is warm to the touch, and not happy that I’m wearing pants with a waistband. I’m dreaming of a mumu right now. Sounds are super loud to me today. My husband sneezed earlier and it...

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I’m still here. Here’s what’s been going on at ChronicBabe HQ…

Posted by on Apr 21, 2017 in announcements | 53 comments

Hello, my friends. It’s been a while since I posted, and I wanted to give you an update—especially since a few of you have written me recently asking if I’m okay. I’m okay. But just okay. It’s been a rough few months here at ChronicBabe HQ. I’ll tell you about it now, because a big part of the reason I run this project is to show the real side of life with chronic illness, including all of its ups and downs. And I want to fill you in on how this part of my business works, too, because it has bearing on how often I’m able to create new content. Acute illness In December 2016 and January 2017, I had an extreme upper respiratory infection that lasted for weeks and sent me to the hospital. It was very scary—struggling to breathe always is, right? Because of that, I missed a lot of fun holiday celebrations and travel. It took me a very long time to recover, and during that time, I was almost completely unable to work. That meant client work fell behind schedule, ChronicBabe projects fell behind schedule, and I spent a lot of time in my PJs… which sounds dreamy but seriously, after a few weeks, a girl just wants to put on a bra and get outside, right? I think all of us know how hard it is to live with chronic illness, and think it should prepare us for handling acute illness all breezy-like, except it doesn’t. In fact, I kind of resented the acute illness; how DARE I get another illness on top of all the other crap I have to manage day in and day out! Sigh… this is just life. It does help some, but when we’re already sick all the time and we pile on another sickness, it’s really tough. A beautiful thing is that I rallied for a couple days in there and got married! It was a tiny ceremony with a tiny group of friends, and low-pressure, and just perfect. I’m very lucky I found enough health to enjoy that day. Family tragedy Quick on the heels of my recovery from acute illness, my mother-in-law became gravely ill. My husband and I drove overnight to be with her and our family, and ended up staying out of town (mostly at the hospital, and then a hospice center) for a couple weeks. She passed away, we held a lovely service, and came home. And I felt completely numb. I’m crying as I write this. I only knew Connie for about seven years, but I saw what an incredible presence she was in the family, and I’m forever grateful to have...

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5 Ways to Avoid Overwhelm When You Have Chronic Illness #AWAPwednesday

Posted by on Feb 15, 2017 in acceptance, ChronicBabe Basics, coping, featured, practicalities, Work | 11 comments

Okay, I’ve got to remember to go to the dry cleaners, and call my health insurance about the EOB, and make sure I take my new vitamins this afternoon, and paint my nails for a photo shoot, and, and write a handful of emails, and… whew! I am overwhelmed! So it really resonated when one of our fellow #ChronicBabes emailed me to ask about overwhelm. (Did you know you can request a video on specific topics or questions around chronic illness life?) It’s easy to get overwhelmed when we have chronic illness, because there are so many things to juggle—and the world is just overwhelming all on its own! I hope you find some of my tips helpful.     *AWAP = As Well As Possible Now it’s your turn: What kinds of things help you get calm and tackle overwhelm? I want to know! Tell me all about it in the comments below. Want more #AWAPwednesday? Check out our #AWAPwednesday video playlist, which has more than 130 videos packed with practical advice, lots of humor, and bloopers. Lots of bloopers. Is there a question I can answer for YOU? Add it to the comments below, or shoot me an email. Until we meet again: Be AWAP! Smooches! (Rough) Transcript: Hi! I’m Jenni Grover Prokopy of ChronicBabe.com and today is AWAP Wednesday (that stands for As Well As Possible). Each week, I offer you my personal favorite tips and techniques to help you craft an incredible life beyond illness. Yes! I know you can. Subscribe to the ChronicBabe YouTube channel today to make sure you never miss another video, OK? One of our fellow #ChronicBabes wrote me recently with a question about overwhelm. She’s been feeling more and more of it since she got sick, and she wondered if I sometimes got overwhelmed, too—and what I do about it. Girl, you KNOW I get overwhelmed sometimes! Not only do I have a handful of chronic illnesses to manage, but I also run my own business teaching women how to live full lives in spite of being sick chicks, and I’m finishing writing my first book, and I have a couple of time-consuming hobbies, and friendships and a husband to maintain, and… I am SO with you on the overwhelm thing. I have a few tricks up my sleeve when it comes to handling overwhelm. Here we go: Make a list. I know, it sounds obvious, but seriously: Make a list. Sometimes I use the reminders app that’s built into Apple computer products, so my lists are synced across all my devices. Sometimes I use the Evernote app if I want to make a list of things I share with my husband or a friend, so we...

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How to say “no” when someone keeps buggin’ you with questions about chronic illness #AWAPwednesday

Posted by on Feb 1, 2017 in ChronicBabe Basics, featured, friends and family, ranting, relationships, self care | 2 comments

Do you get tired of people asking you to justify self-care? Are you sick of answering probing questions about “what’s wrong now?” when you need to reschedule something? Me, too! Today I’ve got my favorite phrases for shutting down those conversations and moving into more productive territory: I think this is something we all deal with, so I came up with a bunch of tips to help you – adapt them to your particular needs. *AWAP = As Well As Possible Now it’s your turn: How do YOU handle conversations where people push back when you set boundaries? I want to know! Tell me all about it in the comments below. Want more #AWAPwednesday? Check out our #AWAPwednesday video playlist, which has more than 130 videos packed with practical advice, lots of humor, and bloopers. Lots of bloopers. Is there a question I can answer for YOU? Add it to the comments below, or shoot me an email. Until we meet again: Be AWAP! Smooches!   (Rough) Transcript: Aw, thanks, but I’ve gotta wash my hair. Gee, that’s a nice invitation, but I have another commitment. Wow, you’re tenacious — thanks, but no thanks. Aw, hell no! Hi! I’m Jenni Grover Prokopy of ChronicBabe.com and today is AWAP Wednesday (that stands for As Well As Possible). Each week, I offer you my personal favorite tips and techniques to help you craft an incredible life beyond illness. Yes! I know you can. Subscribe to the ChronicBabe YouTube channel today to make sure you never miss another video, OK?   Today I want to talk to you about saying no to people when they won’t stop buggin’ you about your chronic illness (or limitations related to it). I was talking with a friend the other day, and she lives in a community where people really push and push if you say no — they demand an explanation. I think that’s baloney! Most of the time, when you say “no” to someone, you don’t owe them a detailed explanation. But people can really make us feel like we have to explain ourselves. Today, I’m sharing a few strategies I’ve learned through the years that shut down unwanted conversations. Let’s say you need to cancel a coffee date with a girlfriend because you’re having a flare-up. You call her and say “I’m having a flare-up, so I’m sorry but I need to reschedule.” She responds with: “But why? I thought you were fine yesterday?” You could: Go into a lengthy explanation of your unpredictable chronic illness and its daily attempts to steal your fun. (That can be a real downer for both of you!) You could get defensive, and end the call abruptly. (That could damage your friendship!) Or… You...

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How to find hope during difficult times with chronic illness #AWAPwednesday

Posted by on Jan 25, 2017 in ChronicBabe Basics, coping, depression, featured, self care | 6 comments

Hello, there! I’m so happy to be back with a fresh video for the new year, all about the little things I’m doing daily to find hope: Yesterday, I was feeling SO down. The world is just bonkers right now, and it’s hard to stay positive when I see bad news every single day. That’s on top of living with chronic pain and its unpredictable, totally sucky nature! So try as I might, sometimes I just get really low. So yesterday I did a handful of things that really helped. Probably just one would have done the trick, but… I never like to do things halfway, so I did a bunch of them. This week’s #AWAPwednesday video shares all the details. I hope they inspire you to come up with your own list of hopeful activities! *AWAP = As Well As Possible Now it’s your turn: What kinds of things are YOU doing to inspire hope in your day-to-day?  I want to know! Tell me all about it in the comments below. Want more #AWAPwednesday? Check out our #AWAPwednesday video playlist, which has more than 130 videos packed with practical advice, lots of humor, and bloopers. Lots of bloopers. Is there a question I can answer for YOU? Add it to the comments below, or shoot me an email. Until we meet again: Be AWAP!...

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Info posted here should not be considered medical advice; it's not intended to replace consultation with physicians or other health care providers. 

Every Babe needs to find her own path for achieving optimal wellness. While we do tons to help guide you, it’s up to each of you to make well-informed choices and live with the consequences. ChronicBabe.com assumes no liability or responsibility for stuff that goes wrong.

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Take what you like from this space, and leave the rest. Use what you learn to make your life better. Be responsible for your own choices. And please don’t sue us. XO!

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