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Tell your health care story - and help others

Have you always wished that you could tell your health care story and help others? Here’s your chance. Here's the scoop from our pal Jennifer Jaff of Advocacy for Patients with Chronic Illness, Inc.:

Advocacy for Patients with Chronic Illness, Inc. and the University of Michigan Center for Managing Chronic Disease have been awarded a grant by the National Institutes of Health (NIH) to study the obstacles facing the chronically ill and caregivers, interventions that do and do not work to surmount those obstacles, and ways in which the work done by the NIH, (including research and clinical trials) may be helpful to patients with chronic illnesses.

With the help of twelve patients and caregivers, we have drafted a survey which is available online.

If you have a chronic illness such as Crohn's disease, ulcerative colitis, rheumatoid arthritis, fibromyalgia, multiple sclerosis, immune deficiency, or other chronic illness—or are a caregiver of someone with a chronic illness, are at least 18 years old, and would like to take the survey, please do so.

If, for any reason, you are unable to take the survey online, or you would prefer to be interviewed by telephone, or if you have any questions at all about the research, please contact Jennifer Jaff (founder of Advocacy for Patients with Chronic Illness) at 860-674-1370. She will answer any questions you may have, provide more details about the study and arrange for an interviewer to call you to schedule the telephone interview at a time convenient to you.

Posted: 6/25/2009 in Announcements

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Tell your health care story - and help others