Chronic Bits:

Your Editrix is convalescing

-Posted: 4/2/2012

Babes: Editrix Jenni has been super-sick, and still has laryngitis - NO VOICE with which to speak. Which is weird. For someone who loves to talk. Thanks for your patience while she heals; you'll still get a newsletter tomorrow, and things should be moving at their usual pace very soon. Hope you're AWAP (as well as possible)! XO Team ChronicBabe

Formal chats at the Forum take a spring break

-Posted: 3/28/2012

Formal chats at the Forum are taking a spring break (and so is Midtern Rachel). The next scheduled Thursday evening chat will be April 12 and the next scheduled Sunday chat will be April 15. If you have future formal chat topics in mind, please email us your ideas. Thank you to the loyal crowd who comes to chat most weeks! See you in a couple weeks.

Don't miss ChronicPal Christine Miserandino on TV today

-Posted: 3/28/2012

Set your DVRs or tune in to "The Revolution" today on ABC at 2pm ET/1pm CT to see Christine Miserandino from But You Don't Look Sick? as she talks with Dr. Jennifer Ashton and Toni Braxton talking about living well with Lupus and being an empowered patient. Awesome!

LIVE chat tonight at the forum in an hour. Join us! :)

-Posted: 3/15/2012

Laughing. Smiling. Positivity. Let's talk all three - how do we cultivate positivity in spite of chronic illness? Join Rachel the Midtern for a LIVE chat at the Forum in an hour: at 6pm PT, 7pm MT, 8pm CT, 9pm ET, 10pm AT (which is Friday, March 16 in Sydney/Melbourne).

LIVE chat tonight at the forum. Join us! 8pm CT

-Posted: 3/15/2012

Laughing. Smiling. Positivity. Let's talk all three - how do we cultivate positivity in spite of chronic illness? Join Rachel the Midtern for a LIVE chat at the Forum on Thursday, March 15 at 6pm PT, 7pm MT, 8pm CT, 9pm ET, 10pm AT (which is Friday, March 16 in Sydney/Melbourne).

University seeks participants in simple study on career coaching and chronic illness

-Posted: 3/12/2012

Our pal Rosalind Joffe sent us a note about a 5-minute online survey about career coaching and workplace issues for folks with chronic illness. Go for it!

Home » About

jenni prokopy, founder and editrix of chronicbabe.comJenni Prokopy, Founder and Editrix - ChronicBabe.com

I created ChronicBabe.com in 2005 to provide an online community for younger women with chronic health issues who want to be their best. A ChronicBabe myself, I was diagnosed in 1997, at the age of 25, with fibromyalgia. Soon after came diagnoses of asthma, anxiety, Raynaud's phenomenon and GERD. For years I struggled, taking test after test and trying a wide assortment of medications, diets and health regimens in an effort to control my symptoms.

One of my biggest frustrations has been the frequent disbelief I encounter when I explain my condition to people. "You're way too young to feel that way!" is a common refrain. "But you look fine," is another. My favorite has to be, "I'm so sorry. That is so sad." Raise your hand if you've heard this before. Maddening, isn't it? Yes, I am young. Yes, I look fine. And yes, it is sad. But as time passes, I choose more often to focus on the positive: I am creative, and I have choices. And even when I'm cramping and blubbering and whining, I'm still a hottie.

In recent years I've found success through a balance of many approaches, including cognitive therapy, biofeedback training, physical therapy, medications, diet modifications, exercise and meditation. There are plenty of days that I don't feel great - but instead of fighting it, I've learned to roll with the punches and have fun in spite of it. I've had a ton of help, especially from my primary care physician, the staff at the Rehabilitation Institute of Chicago, and an amazing circle of friends and family.

Today, I feel good more often than not. That's a success I earned, and I've learned a lot along the way about maintaining my identity in the midst of a swirl of negative energy. I am not my chronic stuff. I am a young, creative, passionate, generous, driven woman. I'm a Babe. I'm here to share what I know with you, and to create a space for others to share their successes, so that you can be a Babe too.

Health writing? Speaking? Consulting? Jenni does it all...

As an award-winning freelance writer with more than 16 years of publishing experience, I know what it takes to make your writing "zing." I offer freelance writing, editing and communications consulting for the health care industry, with a focus on web sites, newsletters, feature articles and marketing materials.

I love to speak to groups about my experiences as a ChronicBabe, and I can tailor presentations to fit your specific audience. Whether you want someone who can talk on a personal level about living with chronic illness, offer tips for living well with chronic illness, or speak to issues of importance to young women, I'm your Babe.

For more information on working with me - whether it's writing, editing, speaking or communications consulting - give me a call: 773.368.3074. Or visit my parent company web site, JenniProkopy.com or my LinkedIn profile.

girl on  laptopWhere else can you find ChronicBabe and Jenni on the web?

Lots of places! We're just getting started exploring all the fun social networking goodies out there; here are a few spots we're getting started:

Send Jenni your tweets via Twitter; her username: chronicbabe.  

Of course, Jenni's on Facebook.

She'll tumble for you. Will you tumble for her? Check out Jenni's Tumblr, The Being Here Experiment.

Hear what Jenni's listening to at the ChronicBabe Last.fm page or check out her playlists at Playlist.com.

Jenni's ChronicBabe MySpace page is kind of defunct, so if you visit and we're not posting stuff, look for Jenni elsewhere, ok ChronicFriends?

We have a little YouTube page and are looking for cool videos to include in our favorites, so send us your ideas!

The Simple Pleasures With Fibromyalgia Flickr Pool - Jenni just joined and is adding pictures of things that are relaxing, peaceful and joyful.

Check out some of our favorite links, the ones ChronicBabes will find del.icio.us.  

And if you'd like to IM Jenni, she's jenniorange on AOL instant messenger.

Also: 

Follow Me on Pinterest

Donate to ChronicBabe.com
pssst! knock before entering...